Any updates on UCH and IVIG?

[gremlin44]

I have a nearly 8 yo son with PANDAS. It has gotten considerably worse this last school year, so I was overjoyed when one day I heard via the grapvine that UCH covered IVIG. We live in the Chicago area, so we decided to go ahead and get an appt to see Dr. K.

 

My son is supposed to see Dr. K tomorrow afternoon. I haven't been on these boards for a while due to many other life issues, but I decided to pop in tonight to read up on IVIG. And now is it correct that I am seeing that people are having problems with UHC denying IVIG coverage?

 

What's the most current experience people are having with this? This is why we've kept our COBRA coverage (it is with UHC) instead of joining my husband's plan through his new contracting job (he was laid off from Nov-April). Augh!!!

[peglem]

My daughter has been getting IVIGs monthly since March, covered by UHC...I don't know how its been coded by the immuno though- I suspect immune deficiency (which she has) but the place where we get the infusions done (local children's hospital outpatient unit) has her down for PANDAS. She's getting another on the 8th and 9th of July.

[Suzan]

I have a nearly 8 yo son with PANDAS. It has gotten considerably worse this last school year, so I was overjoyed when one day I heard via the grapvine that UCH covered IVIG. We live in the Chicago area, so we decided to go ahead and get an appt to see Dr. K.

 

My son is supposed to see Dr. K tomorrow afternoon. I haven't been on these boards for a while due to many other life issues, but I decided to pop in tonight to read up on IVIG. And now is it correct that I am seeing that people are having problems with UHC denying IVIG coverage?

 

What's the most current experience people are having with this? This is why we've kept our COBRA coverage (it is with UHC) instead of joining my husband's plan through his new contracting job (he was laid off from Nov-April). Augh!!!

 

Our first one was covered. I don't know the diagnosis code either. UHC is denying some other stuff of mine so I am very worried.

 

Susan