tapiash Posted June 21, 2010 Report Posted June 21, 2010 I received a prescription from my doctor for IVIG. More confused than ever? What is 2 gram/1kg? Is this what Dr. K recommends?
peglem Posted June 22, 2010 Report Posted June 22, 2010 That's high dose- for autoimmunity. Did your doctor tell you where to take the script? I guess I'd call an infusion center, or ask at a hospital that provides the service and takes your insurance.... The doctor who ordered it for us (an immunologist) has a nurse that takes care of infusions- some they do in office, but my daughter gets them at an outpatient unit of a local children's hospital.
bubbasmom Posted June 22, 2010 Report Posted June 22, 2010 It has to do with the child's size, I do know that. But also wanted to point out that here in St. Louis we went to a hematologist's office which happens to be a cancer treatment center. Done in a setting that is very UNLIKE a medical facility even though it is. We started off in a room that resembled a pediatrician's treatment room. That was just to get everything started. But then he was free to roam the facility where they had video games, snacks, tables and chairs, Wii, air hockey. And he was in his street clothes the whole time, so less stressful.
DaleS Posted June 22, 2010 Report Posted June 22, 2010 I received a prescription from my doctor for IVIG. More confused than ever? What is 2 gram/1kg? Is this what Dr. K recommends? Our dd just received IVIG from Dr. K. last week. Her dose was 1.5 g/kg. 2 g/kg means that your child will get 2 grams of IVIG for every kg that your child weighs. For example, if your child weighs 100 lbs, that equals 100/2.2 kg or 45 kg. Your child would get 45 X 2 or 90 grams of IVIG. As I said, the dose of IVIG that our dd received was 1.5 g/kg, half one day and half the second day. I believe this is Dr. K's regular dose and 2 g/kg is a high dose. One thing to note. Make sure your child is well hydrated before, during and after. Dr. K. pushes several hundred ml of IV fluids before and after the IVIG. This, and making sure your child drinks a lot of fluids prior to and after each day of IVIG will reduce the severity of headaches.
tapiash Posted June 22, 2010 Author Report Posted June 22, 2010 I received a prescription from my doctor for IVIG. More confused than ever? What is 2 gram/1kg? Is this what Dr. K recommends? Our dd just received IVIG from Dr. K. last week. Her dose was 1.5 g/kg. 2 g/kg means that your child will get 2 grams of IVIG for every kg that your child weighs. For example, if your child weighs 100 lbs, that equals 100/2.2 kg or 45 kg. Your child would get 45 X 2 or 90 grams of IVIG. As I said, the dose of IVIG that our dd received was 1.5 g/kg, half one day and half the second day. I believe this is Dr. K's regular dose and 2 g/kg is a high dose. One thing to note. Make sure your child is well hydrated before, during and after. Dr. K. pushes several hundred ml of IV fluids before and after the IVIG. This, and making sure your child drinks a lot of fluids prior to and after each day of IVIG will reduce the severity of headaches. Thanks for the great information. How do I find out whether or not my insurance group approves it. I found an infusion center that takes Cigna for auto immune disorder, I wonder if this means we are covered.
peglem Posted June 22, 2010 Report Posted June 22, 2010 I received a prescription from my doctor for IVIG. More confused than ever? What is 2 gram/1kg? Is this what Dr. K recommends? Our dd just received IVIG from Dr. K. last week. Her dose was 1.5 g/kg. 2 g/kg means that your child will get 2 grams of IVIG for every kg that your child weighs. For example, if your child weighs 100 lbs, that equals 100/2.2 kg or 45 kg. Your child would get 45 X 2 or 90 grams of IVIG. As I said, the dose of IVIG that our dd received was 1.5 g/kg, half one day and half the second day. I believe this is Dr. K's regular dose and 2 g/kg is a high dose. One thing to note. Make sure your child is well hydrated before, during and after. Dr. K. pushes several hundred ml of IV fluids before and after the IVIG. This, and making sure your child drinks a lot of fluids prior to and after each day of IVIG will reduce the severity of headaches. Thanks for the great information. How do I find out whether or not my insurance group approves it. I found an infusion center that takes Cigna for auto immune disorder, I wonder if this means we are covered. Well, call them and ask!
tapiash Posted June 22, 2010 Author Report Posted June 22, 2010 I received a prescription from my doctor for IVIG. More confused than ever? What is 2 gram/1kg? Is this what Dr. K recommends? Our dd just received IVIG from Dr. K. last week. Her dose was 1.5 g/kg. 2 g/kg means that your child will get 2 grams of IVIG for every kg that your child weighs. For example, if your child weighs 100 lbs, that equals 100/2.2 kg or 45 kg. Your child would get 45 X 2 or 90 grams of IVIG. As I said, the dose of IVIG that our dd received was 1.5 g/kg, half one day and half the second day. I believe this is Dr. K's regular dose and 2 g/kg is a high dose. One thing to note. Make sure your child is well hydrated before, during and after. Dr. K. pushes several hundred ml of IV fluids before and after the IVIG. This, and making sure your child drinks a lot of fluids prior to and after each day of IVIG will reduce the severity of headaches. Thanks for the great information. How do I find out whether or not my insurance group approves it. I found an infusion center that takes Cigna for auto immune disorder, I wonder if this means we are covered. Well, call them and ask! I did call and they said yes, but it seems way to easy and too good to be true. Just asking a question Im not ignorant. Im so used to arguing and justifying why I need treatment for my son.Nothing has come so easy.
peglem Posted June 22, 2010 Report Posted June 22, 2010 I received a prescription from my doctor for IVIG. More confused than ever? What is 2 gram/1kg? Is this what Dr. K recommends? Our dd just received IVIG from Dr. K. last week. Her dose was 1.5 g/kg. 2 g/kg means that your child will get 2 grams of IVIG for every kg that your child weighs. For example, if your child weighs 100 lbs, that equals 100/2.2 kg or 45 kg. Your child would get 45 X 2 or 90 grams of IVIG. As I said, the dose of IVIG that our dd received was 1.5 g/kg, half one day and half the second day. I believe this is Dr. K's regular dose and 2 g/kg is a high dose. One thing to note. Make sure your child is well hydrated before, during and after. Dr. K. pushes several hundred ml of IV fluids before and after the IVIG. This, and making sure your child drinks a lot of fluids prior to and after each day of IVIG will reduce the severity of headaches. Thanks for the great information. How do I find out whether or not my insurance group approves it. I found an infusion center that takes Cigna for auto immune disorder, I wonder if this means we are covered. Well, call them and ask! I did call and they said yes, but it seems way to easy and too good to be true. Just asking a question Im not ignorant. Im so used to arguing and justifying why I need treatment for my son.Nothing has come so easy. Oh, sorry, not trying to offend! I thought you'd found it on Cigna's website and hadn't called yet. Sounds like you're on your way...and I hope it is that easy!!! I know what you mean about not trusting that something could be easy- I spent 2 days studying and preparing to ask the immuno to increase IVIG dosage for my daughter. I was flabbergasted when he just said that the literature indicated that a higher dose was needed and then ordered it, without me even needing to explain anything!
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