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Posted

hi - do any of you guys have a child/children with PANDAS and pancreatitis (or GERD)?

 

I'm wondering if my dd's stomach problems that I had started to assume were possibly GERD 'cos they are very similar to what I had between ages 11 and 26 ish, might really be pancreatitis and mine also. Both my kids have come back super low on a test that is indicative of digestive enzymes. I never had any testing done, took GERD meds to no avail and suffered really extreme pain at times and now reading symptomology of the 2, I probably fitted pancreattis symptoms better.

 

I thinking and wondering if system wide inflammation was at work as my dd's stomach issues have precisely paralled her PANDAS symptoms during these last 2 flares...

 

any ideas welcome... thanks..

Posted

yes please... :-)

 

(Find I'm chasing many a rabbit down tunnels (Alice-like most the time) since PANDAS came to visit....)

 

I just got to thinking 'cos our ped says many of her PANDAS kids have low chymotripsin (1 digestive enzyme type) and Dr K talks of GI problems, usually GERD, being a main symptom with adol/adult variant PANDAS.. could it be pancreatits instead of GERD, getting misdiagnosed...

 

(my dd also has very elevated IgG4)

 

thanks for looking, I'll go googling too.. race ya! :-)

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