dut Posted June 21, 2010 Report Posted June 21, 2010 hi - do any of you guys have a child/children with PANDAS and pancreatitis (or GERD)? I'm wondering if my dd's stomach problems that I had started to assume were possibly GERD 'cos they are very similar to what I had between ages 11 and 26 ish, might really be pancreatitis and mine also. Both my kids have come back super low on a test that is indicative of digestive enzymes. I never had any testing done, took GERD meds to no avail and suffered really extreme pain at times and now reading symptomology of the 2, I probably fitted pancreattis symptoms better. I thinking and wondering if system wide inflammation was at work as my dd's stomach issues have precisely paralled her PANDAS symptoms during these last 2 flares... any ideas welcome... thanks..
peglem Posted June 21, 2010 Report Posted June 21, 2010 I was just looking up IgG4 stuff and came across an article on autoimmune pancreatitis. Want me to see if I can find it?
dut Posted June 21, 2010 Author Report Posted June 21, 2010 yes please... :-) (Find I'm chasing many a rabbit down tunnels (Alice-like most the time) since PANDAS came to visit....) I just got to thinking 'cos our ped says many of her PANDAS kids have low chymotripsin (1 digestive enzyme type) and Dr K talks of GI problems, usually GERD, being a main symptom with adol/adult variant PANDAS.. could it be pancreatits instead of GERD, getting misdiagnosed... (my dd also has very elevated IgG4) thanks for looking, I'll go googling too.. race ya! :-)
dut Posted June 21, 2010 Author Report Posted June 21, 2010 (edited) found this http://www.suite101.com/blog/daisyelaine/d...ne_pancreatitis Edited June 21, 2010 by dut
peglem Posted June 21, 2010 Report Posted June 21, 2010 Couldn't find the one I saw before, but here's a lit review on it. I skipped over it because I was looking for IgG4 deficiency, which is the case w/ my daughter. http://www.ijcep.com/files/IJCEP1005001.pdf
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