P.A.N.D.A.S. FaceBook Group.

[EmersonAilidh]

I was pretty amazed when I realized there were no P.A.N.D.A.S. groups on FaceBook so I made one.

 

http://www.facebook.com/#!/group.php?g...5625&ref=ts

 

I figured that it would be a good way to reach out & find a lot of people since FaceBook is so massive. It could also help lead people to the valuable information on this forum. Please join & spread the word. <3

[thereishope]

There are a few of PANDAS groups on fb. Search PANDAS+strep.

 

It's the dots in the acronym that prevent them from popping up.On the fb groups, they didn't put dots.

[EmersonAilidh]

I found three doing that. I hadn't seen those though! I still figure it's a good idea to add the dots just to separate it from all the groups about the bears, haha. Plus, if you just search "pandas" without the dots you're automatically directed to the "Purple Pandas ARE HOT" page. Well, I am at least.

[kimballot]

Hi - glad you are looking for PANDAS on facebook. I've noticed that the facebook page that has to do with pepsi refresh is very active, and some of the others have good inforamtion also.

 

I worry about too many pages and I am wondering if there is some way to link facebook pages. I would hate for people to think they found "the" facebook page and not realize that the answers they are looking for may be on another page.

[EmersonAilidh]

I've seen the Pepsi page, too. & that's what I was trying to do. Just make one broad, general page for it. The PANDAS foundation one seems fairly active but one seems more geared towards letting people know about it than actual discussions about it & one has no members.

[kimballot]

I've seen the Pepsi page, too. & that's what I was trying to do. Just make one broad, general page for it. The PANDAS foundation one seems fairly active but one seems more geared towards letting people know about it than actual discussions about it & one has no members.

 

I see - I think lots of people come here to talk, but facebook may be a more accessible public forum. Do you know if there is a way to link the pages?

[EmersonAilidh]

I know that you could just post links to the other pages in the descriptions of your page, but besides that I am not sure. I'm actually going to go link to the other pages right now. Thank you for suggesting that!