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Posted

Things have been going really well, and I was hoping to give an update here on both girls soon.

 

BUT, NO...

 

This morning Julia woke up with a sore throat, it has progressed to a sore throat, tired, glazed eyes and fever. Sigh. Seems like strep. I don't know if she has been exposed, but it is a constant at school. She is currently on daily zithromax (200mg). She weighs 38lbs.

 

I will take her to the ped tomorrow. They are sympathetic to pandas, but I usually see Dr L for everything- so just don't know how agreeable they will be.

 

These are my thoughts:

 

She is on zithromax- so I am prepared that the strep culture could be negative. I am thinking, we should somewhat assume it is strep and treat appropriately.

 

She is on full strength zithro- so I am thinking we need something stronger. Clindamycin? How long of a course? Stop the zith when she is on Clindamycin? Thoughts?

 

I also want a steroid burst prescribed, so that if she starts going downhill- we can TRY to nip that in the bud.

 

Her sister (also pandas) is symptomless right now. Do I have her cultured this week? She is on full strength zithro also- maybe she won't get it (can I hope?). Do I treat her with anything (she is on zithro, 300mg daily and weighs 62lbs)?

 

Any thought would be appreciated! I am trying to maintain my calm!

 

Thanks!

Posted

When Becca took Clindamycin last year, it was 300mg 3X/day for 10 days. I am really hoping that you don't see an increase in PANDAS symptoms.

Posted

I do hope it's not strep! But if it is, how about switching to Augmentin? I don't remember if you guys have tried it before.

DS12 got an ear infection while on Zithromax plus Augmentin, although it just happened to be a few days after we had stopped the Aug and started Zith... I saw things ramping up and added Aug back, but still, they had to add Rifampin for 10 days. I kept Aug + Rifampin and did not bother with the Zith, as in our case did not seem to help much.

 

Keep us posted and I hope your pediatrician "gets it" and helps out!

Posted

Hi - Dr T recommended clindamycin for us if we got breakthrough strep. Both my kids are on azith proph. My dd just tested +ve for strep in the gut, so we just started cleocin (clindamycin) and she reckons it tastes bad but not gag bad and she is taking it ok. 15ml 3 times a day for 10 days (not sure of the mg per ml, sorry). We are super upping her probiotics and s. boulardii to prevent anything nasty from the clindamycin.

 

Have youthought of doing ibuprofen and curcumin )if you don't already) to keep inflammation down?

 

Good luck with your ped and hopefully, it's just a virus and won't poke her immune system too much....

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