Reducing ABX?

[Worried_Dad]

I think you're right on the money, Fixit! Personally, my wife and I believe that our son never completely cleared his strep infection(s), which would explain why that 1st round of IVIG worked great for 2-3 months but then things went downhill again. Also, the fact that every other member of our family has elevated ASO could mean that our poor PANDAS son has been living in "Strep Central"!

 

Our son's ASO titer did rise with each exacerbation, but we haven't had him retested since he's made all this progress. We need to do that to see where things stand. Also, we've been considering whether to re-test his CaM KII with Dr. Cunningham to see if that's come down as well. (Might get our middle son tested for CaM KII, too; he seems to show mild early signs.)

 

I'll post updated test results as soon as we have them!

 

 

hey dad.....can i ask.....

at this time.....are you still or do you know if you have anything going on

as in....high strep titers, low iga's, rising myco p

 

just that this sydrome is so crazy.....i dont think when our new blood work comes in it will show any infection....

we have a couple of pretty high autoimmune markers...and gut issues...which i think are getting better...

so i guess i'm asking if your son was still fighting strep, that might be why you need hd abx....if someoneslse had myco p..biaxin....

i wonder for amy s...if it was also just immune overdrive that needed to be settled...where as, your boy my still have a difficut time with strep, having it, fighitng it, excreteing it...you know what i mean...