Pandas and Lyme

[mandyknowles]

Do any of you have children who have lyme disease along with pandas?

[cfrei]

Do any of you have children who have lyme disease along with pandas?

 

yes, my daughter has lyme and pandas and it has been particularly difficult because the symptoms for both diseases are the same. She has really bad Tics, anxiety and emotional/behavioral issues. She recently did IVIG and we saw a significant improvement in everything for a couple of days (and she slipped back again recently) so we plan to do another IVIG in August.

[KeithandElizabeth]

Yes, both of my children have lyme disease and its co-infections plus PANDAS.

 

cfrei:

 

How are you currently treating the lyme disease?

 

Elizabeth

[jjk4]

Do any of you have children who have lyme disease along with pandas?

 

Yes, my 9 yr old daughter was dx with PANDAS in Fall 09 and dx with Lyme/Bartonella in March 2010. We are 2 months into Lyme treatment and seeing progress...but still not 100%.

[mandyknowles]

Do any of you have children who have lyme disease along with pandas?

 

yes, my daughter has lyme and pandas and it has been particularly difficult because the symptoms for both diseases are the same. She has really bad Tics, anxiety and emotional/behavioral issues. She recently did IVIG and we saw a significant improvement in everything for a couple of days (and she slipped back again recently) so we plan to do another IVIG in August.

 

 

My daughter has all of the same, and she has multiple personalities....They keep trying to put her in a psych hospital but i am not letting them do that to her. Her dr in connecticut says that we should do the IVIG, so I am gonna try to find her a pandas dr closer to oklahoma if you know of any..

 

Thanks

[mandyknowles]

Yes, both of my children have lyme disease and its co-infections plus PANDAS.

 

cfrei:

 

How are you currently treating the lyme disease?

 

Elizabeth

 

 

she is currently on minocycline and azithromicin, along with a complete vitamin, because alot of her vitamins are down. What are your children on?

 

mandy