IV#6 almost over

[melanie]

We do his infussions at home and switched to optigam and its alot longer than gammaguard.Hes tired but watches movie and researches on the laptop. I cant believe this kid is ever a behavioral problem when I see him sitting here doing this .Im proud right now as we watch the end of the Jonas Brothers concert(video) very loud too.Im going to take him for Japanese food for dinner. I sure hope this works for longer than 2 weeks I would hate to do infusions more frequently than ever 21 days

 

melanie

[mama2alex]

Glad to hear he's doing so well through the longer treatment! Thanks for keeping us updated. I hope this one holds for at least 3 weeks!

[Mary M]

We do his infussions at home and switched to optigam and its alot longer than gammaguard.Hes tired but watches movie and researches on the laptop. I cant believe this kid is ever a behavioral problem when I see him sitting here doing this .Im proud right now as we watch the end of the Jonas Brothers concert(video) very loud too.Im going to take him for Japanese food for dinner. I sure hope this works for longer than 2 weeks I would hate to do infusions more frequently than ever 21 days

 

melanie

 

I had no idea this could be done from home. You are quite a mom, Melanie. I hope this infusion has some staying power--more than a few weeks.

[melanie]

We do the infussions through WAlgreens Optioncare.They send a nurse and its really great .The 1st one was in the hospital and that stunk.Boring and restrictive.When we heard we could do it at home we were thrilled and its worked out great.The nurse is always right there ,in the hospital the nurse was never there except for night when they would wake him up every 1/2 hr. So weve been very happy with the care and lets see how long this lasts.

 

Melanie

[Joan Pandas Mom]

What a great kid. God bless you two.

[Suzan]

We do his infussions at home and switched to optigam and its alot longer than gammaguard.Hes tired but watches movie and researches on the laptop. I cant believe this kid is ever a behavioral problem when I see him sitting here doing this .Im proud right now as we watch the end of the Jonas Brothers concert(video) very loud too.Im going to take him for Japanese food for dinner. I sure hope this works for longer than 2 weeks I would hate to do infusions more frequently than ever 21 days

 

melanie

 

I hope this really helps and you don't have to continue! I am watching your progress with danny since we are doing our low dose too.

 

Susan