at pedi office wish me luck

[saidie10]

got notes in hane...handwriting before and after samples...pictures of wide eyed 5 year old and more proof I am not crazy. nobody better mess with this momma today! I got a speeding ticket and the cop this morning got a real ###### chewing LOL. especially once I got to school and another mom who didn't look like she rolled out of bed was going faster than me and got pulled over too and did not get a ticket. I went and tracked that officer down and chewed him out! damn that made me feel better!!!! wish me luck...i will wait all day if I have to.

[thereishope]

Good luck at the office! keep that fire alive when your face to face with a doctor!

[saidie10]

got notes in hane...handwriting before and after samples...pictures of wide eyed 5 year old and more proof I am not crazy. nobody better mess with this momma today! I got a speeding ticket and the cop this morning got a real ###### chewing LOL. especially once I got to school and another mom who didn't look like she rolled out of bed was going faster than me and got pulled over too and did not get a ticket. I went and tracked that officer down and chewed him out! damn that made me feel better!!!! wish me luck...i will wait all day if I have to.

omg...if you could feel how wet my phone is through these tears...the nurse tells me as I stand there crying..."she is booked all day can you make an appt for friday? I said no I need to see her I need help I have no one." she says " well maybe she can call you during her lunch break and I say can I see her during her lunch break? and she says as I stand there crying no she has to eay and stuff! wtf! I just stormed out. where the ###### do I go now?

[coco]

Ohhhh, I would go back to that office and park my sorry self there! You had an APPOINTMENT, right?!

[forjpj]

Ohh...Good Luck!!

[MomWithOCDSon]

Even if you didn't have an appointment, you can inform the staff that you're willing to wait for any opening . . . a cancellation, a "hole" in the doctor's schedule caused by a late arrival, a hole created by a quick appointment, etc.

 

If you make it pretty clear that you're not leaving without speaking with the doctor face-to-face, my bet is they'll make room for you. Just give 'em the face that says, "If it takes all day, I've got all day!"

[thereishope]

What was your goal today at that appt? Was it for antibiotics? I say call ped's offices, explain your situation and how you need a new doctor TODAY. It may take a few phone calls, but you may be surprised. They do not need vax records or anything for the initial appt, only if they are vaccinating. Even if you get a good response on the first call, call a few places.

 

Deal with fighting with the other office later. Get what you need done first..a good doctor for your child.

Edited May 12, 2010 by Vickie

[saidie10]

No i didn't have an appointment. i really just wanted to show her all my stuff and say hey, if you are not willing to give them antibiotic to just try it, please, please, please use your connections and find me someone who is willing to really see if this is what is going on with them, really take the time and really willing to treat when they find out it is! i figured that her calling some of these doctors that I am curious about would be better than me. they won't even talk to me but as common courtesy, doctor to doctor, I figure they would talk to her.

 

i was so dumbfounded over the "well she has to eat and stuff" comment I just stormed out of there.

 

_________________

 

OK...here is the latest...just got off the phone with the nurse who sounded very concerned and sensitive to my plight. She called to tell me that Dr. M definitely wants to give me the time I need as she reviewed the charts and knows what we are possible dealing with. She scheduled me an appointment for Friday at 4:30 and the Nurse also said she will call me at the end of the day today. So, I feel a little better. I think once the Nurse told her I stormed out and was crying Dr. M said hey, this is the Mom who is very worried about her kids and I need to help her, so we will see.

 

So now off to try and have some sort of resemblance of a normal day

 

What was your goal today at that appt? Was it for antibiotics? I say call ped's offices, explain your situation and how you need a new doctor TODAY. It may take a few phone calls, but you may be surprised. They do not need vax records or anything for the initial appt, only if they are vaccinating. Even if you get a good response on the first call, call a few places.

 

Deal with fighting with the other office later. Get what you need done first..a good doctor for your child.

[Megs_Mom]

I'm so glad they called you back! We lost our first ped in this same situation, except she was going on vacation the next day, my kid couldn't leave the house or get out of bed & she would not call back!!!! And they were mean to me at the front when I was in the midst of that first awareness that something horribly wrong has happened to my 6 year old, and I was either crying or yelling.... Oh, this just brought that back!

 

Anyway... I always forget to use Advil or Motrin for a day or two when we have an exacerbation. I start to freak a little bit when it arrives so suddenly. So if you are looking for a very short term tool, you might want to consider Children's Advil or Motrin. It does help her - hope it might work for you. We use the normal dosing schedule, and it does wear off after 4-6 hours, but it gives a lot of relief.

 

Best - Susan

[saidie10]

I'm so glad they called you back! We lost our first ped in this same situation, except she was going on vacation the next day, my kid couldn't leave the house or get out of bed & she would not call back!!!! And they were mean to me at the front when I was in the midst of that first awareness that something horribly wrong has happened to my 6 year old, and I was either crying or yelling.... Oh, this just brought that back!

 

Anyway... I always forget to use Advil or Motrin for a day or two when we have an exacerbation. I start to freak a little bit when it arrives so suddenly. So if you are looking for a very short term tool, you might want to consider Children's Advil or Motrin. It does help her - hope it might work for you. We use the normal dosing schedule, and it does wear off after 4-6 hours, but it gives a lot of relief.

 

Best - Susan

you know I actually rried it sunday and looking back that was the one day in the last 5 where he seemed kind of normal until that evening when it wore off I guess. I am stsrting that regularly!

[T_Mom]

(vent warning...)

Hi -- I am sorry to be the voice of yet another "upset-Mom" but...

 

#1. The doctor should have called you back -- not the nurse, given you are a patient and you were standing in the lobby crying...

 

#2. IF on Friday, you do not leave with what you want I would strongly encourage you to have a back-up doctor (ANY on the list at the top of the forum??) near you--and go ahead and see if you can make an appt. now just in case.

You may have to travel to see one.

 

#3. This is very difficult and it does not help that PANDAS is a disputed illness--here 100s of parents are spending hours "voting" to raise 50 K for an illness that was identified and shown to be treatable via NIH research, and others around the world--

 

(hit the sarcasm button folks...) Hats off to all the "negative nay sayers" they certainly have been successful in hurting many, many kids...I hope their egos are stroked.

I am really sorry you are going through this and I directly blame those nay-sayers.

--sorry, too much time voting on the Pepsi Refresh--to raise money for something that should be a no-brainer for every pediatrician in the country.

Edited May 13, 2010 by T.Mom

[Mary M]

May your Friday be productive and supportive. Just know we're all standing there behind you...

[saidie10]

doctor called me tonight and is reviewing all the stuff i dropped off. she was very kind as she has always been. she is curious and wants to learn, but obviously admits she is no expert and does not know enough about PANDAS to diagnose or treat my son(s). we are trying to get into see an Immunologist at Texas Children's Hospital in Houston. the pedi said that is the place to go for cutting edge research and technology if you are in Texas so she is calling tomorrow to express the sense of urgency in getting them seen as soon as possible. this doctor has said he has/is seeing/treating PANDAS so we will see. Dr. Javier Chinen is his name, Pediatric Immunologist. following up with pedi friday afternoon in person.

 

WHAT WOULD I DO WITHOUT THIS FORUM AND ALL YOU WONDERFUL MOMS AND DADS? THANK YOU, THANK YOU, THANK YOU! Will keep you guys posted.