ASO titer the exact same as it was 6 weeks ago?

[saidie10]

So I posted a couple of days ago about my DS5 who up until now we were not concerned about PANDAS testing positive for strep on Tuesday and coincidentally seeing an increase in symptoms in the PANDAS suspected DS7 over the last week. We drew blood yesterday and tested ASO and Anti-DNase B and ASO came back at 400, EXACTLY the same as it was 6 weeks ago? Still waiting on Anti-DNase B results.

 

Neurologist says "no drop or rise, but I guess it is good it is consistent"...what they heck does that mean? She said that the Anti-DNase B would be the more telling number for us in conjunction with an exacerbation in symptoms. Is this true? I am just praying the number is up from 561 which it was 6 weeks ago. I know numbers may not rise in some kids but I just need something, anything to have more proof or evidence that we are going through what we are going through.

 

I also told the Neurologist on the phone that my DS7 was also having chorieform movements (piano playing fingers when arms in front, eyes closed). She told me that kids with Tourrettes have chroeiform movements too. I just really feel like she is trying to steer me in another direction even though all the signs point to PANDAS! My son suffered from strep after strep, after strep last year during the same time ALL of his symptoms started...tics and definite sudden onset OCD. Since his last infection and having his tonsils removed in August of 2009 we have seen a serious improvement in behavior, almost no ticcing for days, even weeks at a time, etc. There is no history of OCD or Tourretes on either side, yet both Grandfathers had RF. The signs are all there!!! She just keeps saying we have to cross all our t's and dot all our i's. I am tired of practicing grade school grammar! Let's get serious!

 

Do you guys think it might be time for a second opinion? Thanks for any advice

[sf_mom]

Yes!!!!! Consult with one of the PANDAS specialist talked about on this forum... Dr. B, Dr. K, Dr. L, Dr. T.