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Posted (edited)

I've been reading, and I keep coming up with information on permanent damage, yet the episodes end after puberty? I'm confused! What is the permanent damage being done? I don't care what part of the brain is damaged, how will it affect my child's life?

 

 

If this made no sense the first time you read it I edited it...

Edited by harpazo_hope
Posted

Where are you getting this info? Here's the conclusion I'm drawing: Pandas is an autoimmune condition that erroneously activates neural receptors but does not cause tissue damage. What it can do is disrupt learning and development and possibly lay down some neural pathways that will be difficult to change. I also don't think it magically disappears with puberty.

Posted
Where are you getting this info? Here's the conclusion I'm drawing: Pandas is an autoimmune condition that erroneously activates neural receptors but does not cause tissue damage. What it can do is disrupt learning and development and possibly lay down some neural pathways that will be difficult to change. I also don't think it magically disappears with puberty.

 

 

http://webpediatrics.com/pandas.html

 

I've read it elsewhere, or heard it elsewhere... I'm on information overload right now so I can't find it.

Posted
Where are you getting this info? Here's the conclusion I'm drawing: Pandas is an autoimmune condition that erroneously activates neural receptors but does not cause tissue damage. What it can do is disrupt learning and development and possibly lay down some neural pathways that will be difficult to change. I also don't think it magically disappears with puberty.

 

 

http://webpediatrics.com/pandas.html

 

I've read it elsewhere, or heard it elsewhere... I'm on information overload right now so I can't find it.

Oh, yeah, I had forgotten that Dr.K says that. I wonder if he's talking about structural damage or functional damage?

Posted

Here's something to read

 

From Buster's FAQ sheet

http://www.latitudes.org/forums/index.php?showtopic=6266

 

Q: Does PANDAS cause permanent brain injury?

A: At present, it looks like exacerbations in PANDAS do not cause permanent harm to the brain. MRIs reveal no demyelization and while there are reports of enlargement of the basal ganglia (a part of the brain controlling fear, hunger, and motor skills), this seems to remit after treatment. We all certainly hope this is the case.

Posted
Here's something to read

 

From Buster's FAQ sheet

http://www.latitudes.org/forums/index.php?showtopic=6266

 

Q: Does PANDAS cause permanent brain injury?

A: At present, it looks like exacerbations in PANDAS do not cause permanent harm to the brain. MRIs reveal no demyelization and while there are reports of enlargement of the basal ganglia (a part of the brain controlling fear, hunger, and motor skills), this seems to remit after treatment. We all certainly hope this is the case.

 

 

Thanks. :)

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