7upMom Posted April 30, 2010 Report Posted April 30, 2010 Keep your head up even when you get discouraged and frustrated- it will cycle back around for you and that fighting spirit will come raging back. Just a moment to cry though that we all understand and we all cry with you too and then fight alongside you the next day!! Hang in there
Mary M Posted April 30, 2010 Report Posted April 30, 2010 We're sharing your experience right now as well. How many tears can we all collectively shed? Thankfully we have each other...Before I knew about this group, alone was sheer misery...at least crying together is better than crying alone.
kimballot Posted May 1, 2010 Report Posted May 1, 2010 I know.... the stories about the kids who are cured are lovely, but for many of us it will be sheer management. Luckily, PANDAS kids have smart, resourceful parents who do not give up. What can you do this weekend that he (and you) might enjoy together? Rent a movie? an ice cream cone? Something to not let the downward spiral take over while you figure out what to do next. We are with you.
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