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I am still seeking help answers and treatment for dd. One of the specialists I spoke with asked me if I was open to alternative approaches and I responded that if she told me to feed DD fried dandilions every night for dinner I would do it- I am that desperate! she responded that I might want to try this approach.

 

Have any of you tired this with your PANDAS? Did you see improvement? I dont know anything about it and plan to read about it tonight... but the overview reads "Much of the focus of the NMT system is to optimize the immune system response to microorganisms that cause disease that it is used to treat auto-immune disorders..'....

 

We are looking at IVIG for her but also want to make sure that we are doing everything we can to help in the interim, as well as bewtween IVIG sessions as it seems that often more than 1 is needed....

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