bgbarnes Posted April 9, 2010 Report Posted April 9, 2010 We are less than 2 weeks into this and I thought we did not have any tics...HOWEVER I have questions for you experts out there. When my son is exacerbated- or gearing up to it....He will often say the same thing over and over again- it is generally a sentence- it is like he is stuck- even though I answer him. For example he said he never asked for baseball lessons( the truth is he did but that is besides the point). I answered him and then he said it again. I answered and he said it again. This must have happened 10-15 times. He is adamant, unyielding and this happens ALL THE TIME when he is what I now know is exacerbated. I have always thought he did that because he was being defiant ( and yes it DRIVES ME NUTS) but now I am wondering if it is part of PANDAS? The teacher also says she thinks sometimes he does not realize he is talking.....He has had a couple small episodes of eye blinking and lip licking in his life but not in a long while.....the good news is the Pediatrician was willing to call in antibiotic for me- waiting to pick it up now! HELP! Brandy
sf_mom Posted April 9, 2010 Report Posted April 9, 2010 More likely OCD/ADHD then a TIC... We are less than 2 weeks into this and I thought we did not have any tics...HOWEVER I have questions for you experts out there.When my son is exacerbated- or gearing up to it....He will often say the same thing over and over again- it is generally a sentence- it is like he is stuck- even though I answer him. For example he said he never asked for baseball lessons( the truth is he did but that is besides the point). I answered him and then he said it again. I answered and he said it again. This must have happened 10-15 times. He is adamant, unyielding and this happens ALL THE TIME when he is what I now know is exacerbated. I have always thought he did that because he was being defiant ( and yes it DRIVES ME NUTS) but now I am wondering if it is part of PANDAS? The teacher also says she thinks sometimes he does not realize he is talking.....He has had a couple small episodes of eye blinking and lip licking in his life but not in a long while.....the good news is the Pediatrician was willing to call in antibiotic for me- waiting to pick it up now! HELP! Brandy
thereishope Posted April 9, 2010 Report Posted April 9, 2010 (edited) It sounds like reassurance OCD. He either he wants you to answer the same question over and over, repeat things back in a very specific way, wants to ensure that you heard everything he had to say.....My son did that. Edited April 9, 2010 by Vickie
peglem Posted April 9, 2010 Report Posted April 9, 2010 Or he's forgotten the answer: http://www.latitudes.org/forums/index.php?showtopic=7729 Anyway, it does sound like part of the PANDAS.
bgbarnes Posted April 9, 2010 Author Report Posted April 9, 2010 It sounds like reassurance OCD. He either he wants you to answer the same question over and over, repeat things back in a very specific way, wants to ensure that you heard everything he had to say.....My son did that. OMG! I feel like I just got hit in the GUT...I had no idea- I have just thought he was being a disrespectful defiant child- he does get an attitude with it too......WOW! I seriously had no idea that it could be OCD.....I don't know if I should feel good b/c I know or devastated... On one hand I am thrilled to finally have a diagnosis and know there is treatment- but there is just so much....luckily I got a pediatrician to call in antibiotic tonight- my ds started backsliding after being off of Omnicef for 3 days ( they were not willing to go out on a limb and treat it without a positive culture earlier this week- but after pleading that he is backsliding and we have an appointment with a specialist Tuesday he agreed.......) Funny-I have always been a more natural Mom and have avoided antibiotics whenever possible- boy has my world changed!!!!! THANK YOU for your quick responses!! Brandy
thereishope Posted April 9, 2010 Report Posted April 9, 2010 (edited) I think one of the more bothersome things for me at was going to the store and in the toy aisle hearing "Mom, I like this toy. Mom, did you see? Look. Mom, what's the name of the toy (this as a way of quizzing me to make sure I was paying attention) A few minutes pass.... "Mom, do you still remember the toy I wanted. Are you gonna put it on my Christmas list?' Side note...Christmas would be like 6 months away when he'd ask me to put it on "his list". I always told my husband not to go to the toy aisle, but he'd just keep doing it. btw...in one shopping trip he'd do this for the upwards of 10+ toys....seriously. Edited April 9, 2010 by Vickie
bgbarnes Posted April 9, 2010 Author Report Posted April 9, 2010 I think one of the more bothersome things for me at was going to the store and in the toy aisle hearing "Mom, I like this toy. Mom, did you see? Look. Mom, what's the name of the toy (this as a way of quizzing me to make sure I was paying attention) A few minutes pass.... "Mom, do you still remember the toy I wanted. Are you gonna put it on my Christmas list?' Side note...Christmas would be like 6 months away when he'd ask me to put it on "his list". I always told my husband not to go to the toy aisle, but he'd just keep doing it. btw...in one shopping trip he'd do this for the upwards of 10+ toys....seriously. I recognize that child well!! I had NO idea that that could be considered OCD- I just thought he was just persistent!! I thought OCd was like when someone needs to wash their hands 100 times a day or the rituals- so this repetitive verbal pattern is part of it too- WOW! If I take away TV as a privilege- I can guarantee he will ask me no less than 20-30 times if he can watch TV now- not sure that is OCD-more likely just wanting what he wants when he wants it!! Brandy
thereishope Posted April 9, 2010 Report Posted April 9, 2010 (edited) As for tv, he feels if he asks you one more time you just might give in and the thought of that possibility being there drives him up the wall and he can't help but ask. I would think for most kids w/o OCD (depending on age of course) they would ask maybe 3 times then eventually drop it. They can come to grips with it. Have you seen this list of OCD in chidlren. It's compiled from experiences of people on the forum. Unfortunately, my son had a lot of OCD. http://www.latitudes.org/forums/index.php?...ic=6153&hl= Edited April 9, 2010 by Vickie
coco Posted April 10, 2010 Report Posted April 10, 2010 This is the one that causes me to color my hair more often than otherwise! Yeeshh! My dd does this one all the time. "Mom, I love you!" Of course I repond I love you, too. Then she says it another 7 times and my voice gets a bit tighter in my reply and perhaps, just perhaps, I'm not smiling quite so hugely. Then I try and change the subject and she will respond with, "Mom, are you mad? -- because I want to make you happy." We go over this and over this "who's on first Abbott and Costello routine" until my face turns purple. Ugh. My dd even has to have you say it with the right inflection, look on your face, etc. It has gotten a bit better lately after post ivig 8 weeks and I am now able to make the suggestion to her that when this starts happpening I tell her, "You don't need to say/ask that anymore, throw it out the window!" And she is many times able to do that. The evenings are rougher for sure, but this strategy has helped.
bgbarnes Posted April 10, 2010 Author Report Posted April 10, 2010 This is the one that causes me to color my hair more often than otherwise! Yeeshh! My dd does this one all the time. "Mom, I love you!" Of course I repond I love you, too. Then she says it another 7 times and my voice gets a bit tighter in my reply and perhaps, just perhaps, I'm not smiling quite so hugely. Then I try and change the subject and she will respond with, "Mom, are you mad? -- because I want to make you happy." We go over this and over this "who's on first Abbott and Costello routine" until my face turns purple. Ugh. My dd even has to have you say it with the right inflection, look on your face, etc. It has gotten a bit better lately after post ivig 8 weeks and I am now able to make the suggestion to her that when this starts happpening I tell her, "You don't need to say/ask that anymore, throw it out the window!" And she is many times able to do that. The evenings are rougher for sure, but this strategy has helped. OMG! MY DS Does that too. I just always thought he said it b/c he might be feeling bad for some previous behavior, there is too much silence or something was going on that he needed to hear me say it back. I have turned it into a game of I love you more than you love me and we answer Impossible( in Spanish to make it even more fun) or try and think of bigger ways to love each other- we laugh and giggle and have a really special thing with it... I can't say I mind that one- but I never thought it might be OCD....boy have I been in denial!! I just thought he loved me lots!! Brandy
trggirl Posted April 10, 2010 Report Posted April 10, 2010 Yes, my daughter did this. She would say a sentence and then say it over and over. She also did it on reading. We had trouble making it through a page of a book because she would read a word or sentence and then have to repeat it many times to the point that she would forget what she was reading. When we finally made it to the next sentence, she would start the process again.
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