Scary Day, dd8 very sick

[Joan Pandas Mom]

So happy she is feeling better. Hang in there.

 

Thanks again my friends. DD8 is finally perking up and I feel that by tomorrow she will be much improved. She is already improving just very tired still.

 

Susan

[nomoz]

So sorry to hear your daughter was so ill. Glad to see she is perking up. Funny you should mention the toe thing.. What is it she does? My daughter talks about feeling the need to curl her toes quite a bit - and is pretty fussy about shoes. I was just wondering if its a similar behavior.

Also, did you get any immune bloodwork done? My daughter is sick frequently, too - we are looking at a possible immune suppression, but need more bloodwork to pinpoint it.

I hope your little girl is much better tomorrow.

All positive thoughts coming your way!

Noelle

[Suzan]

So sorry to hear your daughter was so ill. Glad to see she is perking up. Funny you should mention the toe thing.. What is it she does? My daughter talks about feeling the need to curl her toes quite a bit - and is pretty fussy about shoes. I was just wondering if its a similar behavior.

Also, did you get any immune bloodwork done? My daughter is sick frequently, too - we are looking at a possible immune suppression, but need more bloodwork to pinpoint it.

I hope your little girl is much better tomorrow.

All positive thoughts coming your way!

Noelle

 

Thank you and she is doing much better today, yahoo! Regarding her toes, she will flex her big toe back and forth and back and forth. Her thumbs are like she's clicking a ball point pen over and over. She's always felt the need to crack her shoulder and ankel but the thumb/toe thing is new. We have done immune workups for her and so far she is a low responder but still in the normal range of everything.

 

Susan

[Suzan]

It's amazing how much can change in a day. She is not well this afternoon and evening. She is angry and mocking and worried about whether I am mad at her all the time again, whining, upset. I think it is from the prednisone but it feels like PANDAS. She is still very congested but no more fever and the noises in her chest are much better and she can breathe much better. My Uncle (family practitioner) said I could try to cut her prednisone dose in half tomorrow and see how she does and maybe keep it at that for a few days before getting her off. She should be doing 4 more days at the current dose. I don't know whether the prednisone would help her in the long run by sticking through it but it's not pleasant if that is what is causing her behavior.

 

 

Susan