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[worriedmommy]

Do you have any idea what the rash is? My daughter keeps getting a rash that looks like patches of poison ivy on her knees and elbows. It is EXTREMELY itchy! It first started in Nov 2009, and has gone away and returned 4 times since then. The dermatologist originally diagnosed it as Gionotti Crosti, since it followed an illness. However, from what I've read, Gionotti Crosti is not horribly itchy, and it usually doesn't come back. Oh...I should also add, that when this rash goes away, it peels. Does this sound like your son's rash?

 

 

Hi Brandy,

 

Thanks for the tip-started the Motrin this evening- gave him Benadryl too- since I am afraid his allergies are causing further inflammation and he has a skin rash- looks similar to poison ivy but not quite- it is on his face and upper arms.

Brandy

Edited April 6, 2010 by worriedmommy

[bgbarnes]

Do you have any idea what the rash is? My daughter keeps getting a rash that looks like patches of poison ivy on her knees and elbows. It is EXTREMELY itchy! It first started in Nov 2009, and has gone away and returned 4 times since then. The dermatologist originally diagnosed it as Gionotti Crosti, since it followed an illness. However, from what I've read, Gionotti Crosti is not horribly itchy, and it usually doesn't come back. Oh...I should also add, that when this rash goes away, it peels. Does this sound like your son's rash?

 

 

Hi Brandy,

 

Thanks for the tip-started the Motrin this evening- gave him Benadryl too- since I am afraid his allergies are causing further inflammation and he has a skin rash- looks similar to poison ivy but not quite- it is on his face and upper arms.

Brandy

 

THAT is exactly what his rash was like- a week later it now is not itchy but bumpy on his skin and will slowly go away- what worried me is it was on his face and started creeping towards his eye- but never got there. I does not seem to be peeling yet- but I have not gotten a good look at him....I have never heard of Ginoti Crosti but will check it out. I originally thought it was a separate thing but now I am not so sure!!

[bgbarnes]

Welcome. So, did they find he had strep in his gut? As for PANDAS symptoms, my son did not have tics. He also had many of the problems you listed. I have also learned that when he wets his bed (he's now 6) it means he's probably getting sick. My heart stops every time I hear "Mommmmmmmy!" in the middle of the night when it's wet. Doesn't happen often, but when he was in his last strep triggered exacerbation, it happened every night for probably over a month.

 

So, you are now on Omnicef. How long is that prescription for?

 

Regarding the strep in the gut- not that I know of but I figure it has GOT to be there- it is where all his pain starts and is focused- he never has a sore throat from it- do you know how they test for that? OR should they have been able to tell with the Endoscopy?

Brandy

Hi Brandy,

Welcome to the board. My son had(has?) strep in his gut and they found it through a comprehensive GI panel. He also had elevated titers (have they run those on your son?)

I would say try to keep him on antibiotics until you see the specialist. It is very important that you test the whole family to see if anyone else has it. Even on antibiotics, if they are exposed the symptons will remain.

I am sorry your son is going through this, but doesn't it feel better when you know he is not doing it on purpose? I would get so frustrated with him before we figured out what was going on. It is hard still when he is having a bad day, but at least now we know.

Isabel

NO titers run yet and good to know about Comprehensive GI panel- God there is so much to learn my head is swimming. However my son came back from Florida- last day of his antibiotic and can I tell you how calm he is- had a great day at school!! he is just SOOOOOO much calmer- my child is back!!! let's hope it stays this way!! if that is not a sign that Strep has something to do with his behavior I don't know what does!!

[worriedmommy]

Welcome. So, did they find he had strep in his gut? As for PANDAS symptoms, my son did not have tics. He also had many of the problems you listed. I have also learned that when he wets his bed (he's now 6) it means he's probably getting sick. My heart stops every time I hear "Mommmmmmmy!" in the middle of the night when it's wet. Doesn't happen often, but when he was in his last strep triggered exacerbation, it happened every night for probably over a month.

 

So, you are now on Omnicef. How long is that prescription for?

 

Regarding the strep in the gut- not that I know of but I figure it has GOT to be there- it is where all his pain starts and is focused- he never has a sore throat from it- do you know how they test for that? OR should they have been able to tell with the Endoscopy?

Brandy

Hi Brandy,

Welcome to the board. My son had(has?) strep in his gut and they found it through a comprehensive GI panel. He also had elevated titers (have they run those on your son?)

I would say try to keep him on antibiotics until you see the specialist. It is very important that you test the whole family to see if anyone else has it. Even on antibiotics, if they are exposed the symptons will remain.

I am sorry your son is going through this, but doesn't it feel better when you know he is not doing it on purpose? I would get so frustrated with him before we figured out what was going on. It is hard still when he is having a bad day, but at least now we know.

Isabel

NO titers run yet and good to know about Comprehensive GI panel- God there is so much to learn my head is swimming. However my son came back from Florida- last day of his antibiotic and can I tell you how calm he is- had a great day at school!! he is just SOOOOOO much calmer- my child is back!!! let's hope it stays this way!! if that is not a sign that Strep has something to do with his behavior I don't know what does!!

 

What is a comprehensive GI panel? My dd just saw the GI doctor for the 1st time on Friday, and she's scheduled for an endoscopy on April 14th. Is there something specific I should ask for before they do that?