What dr.'s are you all using for your PANDAS children?

[tylermom]

I know there is the one in chicago, Dr. K., one of the ladies on this board told me about one that treats it in houston, tx, which is only 2 hrs away from me. i'm waiting on info from my insurance to let me know if this dr. collard in houston is in network with my insurance. i've also seen you guys post about other dr.'s that have diagnosed your children with PANDAS or treated your children. i know that there is only a handful of dr.'s out there that treat this. can you all tell which ones you are using. also, will these dr.'s see the whole family, because i think one of us is a strep carrier. thanks!

 

jennifer

[thereishope]

Here is the link to doctor that some have recommended. They are not necessarily "PANDAS experts".

http://www.latitudes.org/forums/index.php?showtopic=6428

 

There are only a handful of doctor that are considered the "top doctors" in the world of PANDAS. They are good for diagnosing and treating. They are the Dr K you referred to, Dr Latimer, Dr T, Dr Bouboulis. I am sorry, but none are near TX. Some do phone consultations and others travel to them. They may willing to work with your local doctor and guide them through possible treatments. As for the strep carrier, is it the PANDAS child? If not, if you have an understanding local doctor that is willing to listen and work with you, they can help you figure it out and hopefully treat the carrier, erradicate the strep, and maintain health.

 

Strep carriers needs stronger antibiotics and I believe for a longer period of time. 3 weeks after finishing all meds, you take the person back in for a follow up strep test to make sure they are in the clear. Prior to that 3 week mark, they run the chance of getting a false negative. It is important for you to have a doctor that does not have the mentality that a strep carrier does not need to be treated.

Edited March 28, 2010 by Vickie

[tylermom]

thank you vickie for the link to all the dr.'s that treat PANDAS, i am willing to travel where ever to get my boys better!

[dut]

edit

Edited March 28, 2010 by dut