Any advice?

[airial95]

We're still plugging away on the abx, and making noticable progress, but the more we track his issues in greater detail, we're seeing a pattern. His most difficult times are in the monrings, getting ready for day care, getting out the door to day care, and our crazy breakfast dance at day care before mommy can leave. He seems okay with the separation - walks me to the door, hugs and kisses, no tears (when he's on the abx anyway) but his teachers are noticing that most of his anxieties and aggressive outbursts are in the morning before nap, and after nap he seems to improve. We've always known that his are worse when he's tired but we're noticing that his patterns seem to point to some sort of anxiety related to school - even though he's always loved it before.

 

Now that's he's being more verbal, he sometimes tells us on particularly rough mornings that he doesn't want to go to school.

 

Day care has been wonderful and very understanding, we have a director who did her PhD in childhood disorders and is actually familiar with PANDAS and agrees it's an appropriate diagnosis for him. They've been fantastic and amazingly haven't threatened expulsion for us yet! (Although I think that's only because my husband and I have always been very proactive with our children in addressing any and all behavioral issues)

 

Being a stay at home mom isn't much of an option for me, but Abuelo (grandpa) is retired and could watch him if we decided to pull him out of day care, but I'm not sure if that would help or hurt, since he's going to have to learn how to cope.

 

Has anyone else noticed patterns like this?

[Joan Pandas Mom]

Airial that is such a tough one. Is there any way Abuelo could bring your s in after his AM nap?

 

We're still plugging away on the abx, and making noticable progress, but the more we track his issues in greater detail, we're seeing a pattern. His most difficult times are in the monrings, getting ready for day care, getting out the door to day care, and our crazy breakfast dance at day care before mommy can leave. He seems okay with the separation - walks me to the door, hugs and kisses, no tears (when he's on the abx anyway) but his teachers are noticing that most of his anxieties and aggressive outbursts are in the morning before nap, and after nap he seems to improve. We've always known that his are worse when he's tired but we're noticing that his patterns seem to point to some sort of anxiety related to school - even though he's always loved it before.

 

Now that's he's being more verbal, he sometimes tells us on particularly rough mornings that he doesn't want to go to school.

 

Day care has been wonderful and very understanding, we have a director who did her PhD in childhood disorders and is actually familiar with PANDAS and agrees it's an appropriate diagnosis for him. They've been fantastic and amazingly haven't threatened expulsion for us yet! (Although I think that's only because my husband and I have always been very proactive with our children in addressing any and all behavioral issues)

 

Being a stay at home mom isn't much of an option for me, but Abuelo (grandpa) is retired and could watch him if we decided to pull him out of day care, but I'm not sure if that would help or hurt, since he's going to have to learn how to cope.

 

Has anyone else noticed patterns like this?

[reactive]

We're still plugging away on the abx, and making noticable progress, but the more we track his issues in greater detail, we're seeing a pattern. His most difficult times are in the monrings, getting ready for day care, getting out the door to day care, and our crazy breakfast dance at day care before mommy can leave. He seems okay with the separation - walks me to the door, hugs and kisses, no tears (when he's on the abx anyway) but his teachers are noticing that most of his anxieties and aggressive outbursts are in the morning before nap, and after nap he seems to improve. We've always known that his are worse when he's tired but we're noticing that his patterns seem to point to some sort of anxiety related to school - even though he's always loved it before.

 

Now that's he's being more verbal, he sometimes tells us on particularly rough mornings that he doesn't want to go to school.

 

Day care has been wonderful and very understanding, we have a director who did her PhD in childhood disorders and is actually familiar with PANDAS and agrees it's an appropriate diagnosis for him. They've been fantastic and amazingly haven't threatened expulsion for us yet! (Although I think that's only because my husband and I have always been very proactive with our children in addressing any and all behavioral issues)

 

Being a stay at home mom isn't much of an option for me, but Abuelo (grandpa) is retired and could watch him if we decided to pull him out of day care, but I'm not sure if that would help or hurt, since he's going to have to learn how to cope.

 

Has anyone else noticed patterns like this?

You are lucky to have an understanding day care. My ds9 was four when he had his worst flare. He had constant spitting. We had to keep him home for about six weeks, and when he did go back to day care, he was still spitting, so the day care just let him spit in the trash can; they kept it by him.

 

I think all parents, including you in this case, need to weigh the pros and cons of being in day care or not. Not sure how old your ds is, but he could benefit a lot from being in this setting and the structure it provides. As hard as it is to get out the door, believe me I know, I am glad now I kept him in "school". I also have a very understanding boss; I am hardly ever on time to work.

[sf_mom]

We decided to put off entering our twins into preschool. They were scheduled to start in June and they will be 3 on May 31st. We are thinking at least another year and 1/2 and starting them at 4 1/2. Our thoughts..... since their CaM Kinase is high, they both have low IGGs and were exposed to a resilient bacteria at six months old we want to give their immune systems every opportunity to recover without any additional exposures or more aggressive treatments (currently on antibiotics). We are hoping that their immune system 'will outgrow' the current issues. They are not allowed in any social settings either... no parks, no outing without parents or nanny, no gym 'kids center', no one allowed at house that is sick or recently sick, etc. They will never remember NOT being in preschool and will have plenty of time to catch up when they do enter school. We hope to retest their underlying immune issues as we move forward. Immune system is not fully developed until 5. If they are off to a bad start it can only get worse with repeat exposures.

 

If you are going to have his Abuela watch him please have him checked for strep....

[thereishope]

About preschool, if it means anything, my 2 boys didn't go to preschool until right before 5 years old. Turned 6 in kindergarten. They are well adjusted, on track for school, and doing well. One year of preschool is definitely enough. My PANDAS son is 6 and currently in kindergarten. My daughter will be attending preschool next school year. I am so nervous sending her there knowing at that age, fingers are still put in noses, hygiene isn't that great, etc. It's gonna be hard for me.

 

We decided to put off entering our twins into preschool. They were scheduled to start in June and they will be 3 on May 31st. We are thinking at least another year and 1/2 and starting them at 4 1/2.

[Megs_Mom]

Since you have a pretty tight window of time when he has issues, maybe spend a week or so documenting what the issues primarily are, and then try to develop a plan with the daycare (since they are clearly great!) to cope with these. It sounds like he enjoys it most of the time? We did make accomodations when our daughter was 3 and in preschool - we had her picked up early as she could not eat at all in school. But we still went every day. If you do have his grandpa watch him, I'd agree with the idea of going in after the am nap. I don't think preschool is a "need" for most kids, but if this is the best plan for your family, then try not to give up on it too early. And you have a great preschool!!! Tell them we all love them!

[airial95]

Unfortunately, it's more of a child care situation than a pre-school situation. Both my husband and I work full time and with my career I can't really afford to be a stay at home mom (although I wonder if that would really be the best for him!!) Abuelo is always an option, but since he lives across town, it wouldn't make much sense for him to drop him off after nap, if he's going to take him it would be all day.

 

We're going in for a follow up with the Dr and this will be my number 1 question to the Dr. (okay, maybe not #1 - but it will be up there!) I'll be armed with all sorts of charts and graphs that have tracked his behavior since our last visit - we're engineers, graphs are great!!