Tell me its all normal

[melanie]

Things have been really good.We went to the city yesterday had dinner a show great day no tics very happy and today hes angry and ticccccccing like crazy Iv is scheduled again for next week again I hope hes ok tomoeeow

 

For those of you who do the iVs monthly do you see this alot up and down and up and down

 

Melanie

[nevergiveup]

Yes the first monthly ivig, my dd did have some symptoms right after ivig then she goes into remission about 2 weeks and then she seems to have a lot of tics again. Each month its gotten better unless she gets a cold then she has a very strong but short ticcing reaction while she is sick. (Interesting before monthly ivig she had remission of symptoms while she was infectious now its the opposite she has extreme symptoms but very short lived while sick. I can tell you with ivig the flow of symptoms changes from what you were accustomed to. Its becomes rather unpredictable, or different than pre ivig. Maybe because we as parents after so many years knew our children's PANDAS's cycles and after ivig these cycles are completely different and their triggers are different. With more time you may understand more. Hard to explain but my dd is dramatically different and swears her ocd is gone with ivig. Tics are still an issue at odd times mostly third week after ivig and if she is exposed to viruses.

 

Things have been really good.We went to the city yesterday had dinner a show great day no tics very happy and today hes angry and ticccccccing like crazy Iv is scheduled again for next week again I hope hes ok tomoeeow

 

For those of you who do the iVs monthly do you see this alot up and down and up and down

 

Melanie

[melanie]

Funny you say it changes with a cold He has a cold not horrible just stuffy.I thought it was more a sensory thing.He was frusterated and pissy all last night.I went tobed early so not to fight with him.Im keeping a daily journal to see if there is a pattern.Do you have him on antibiotics?

 

Melanie