Monthly exacerbations?

[matis_mom]

Hi - congratulations on the birth of your daughter :-)

 

I'm no expert on anything and especially not Lyme but it's been getting some press on here lately and, if I remember right, it does cycle - so symptoms cycle with the life cycle of the spirochete, I believe. Not saying it's wot ur dealing with but thought it worth a mention. Lyme Mom on here seems very conversant with Lyme, perhaps you could PM her?

 

DUT,

 

Just read the thread and you are absolutely right! Lyme cycles every four weeks, it makes your legs or knees hurt and can cause swollen joints. Igenex is the preferred lab for the test but you must see an ilads trained specialist, NOT an infectious disease doctor, if you really want to be SURE it isn't lyme. I would not see an infectious disease doc for lyme ever.

 

Lyme Mom

So, what's an "ilads trained specialist", and how do you find one? The doctor we saw first was convinced he had an underlying Lyme infection, but the bloodwork never supported that notion... But maybe it's something to revisit.

 

Isabel

[lboll]

I am hearing a lot about seasonal reactions, bad PANDAS behavior in winter, exposure to too many ailments.

 

Maybe we should have a fund where our kids can be shipped to a camp in wintertime in California or the Southwest?

 

Honest, if my son got well in the autumn and I knew winter was coming hard, I'd be sorely tempted to isolate him.

I live in Phoenix. My daughter gets flares and exacerbations in the fall and winter as well. I think schools are germ factories!

That kills my idea of sending him out to Phoenix to live with Grandpa!

 

Isabel

 

This is all so interesting. Each year at this time, we usually 'up' our son's blood pressure medicine (off label use- to calm him down). We up it because his symptoms are so bad. We thought it had to do with his increasing weight, but could it be because of all the illnesses surrounding him? Very interesting question to ponder. Thanks so much for bringing this up!