Good News Danny is having the IVIG

[Alex]

Way to go Melanie--you have been through alot, so here is hoping for the best for you, Danny and your family. Hope you have a good weekend.

 

Deanna

 

 

Hi

 

Hes all done for today it took about 4 hours and no problems to report I have BCBS of NJ he is having privigen 10% Liquid 60 grams=600ml to be infused 3-4 hrs once every 3 weeksvia vista pump

 

Dx is selective Ig deficiency

cronic condition is PANDAS

 

Melanie,

How much does Danny weigh?

 

 

He is 5'9 and weighs 140-145 Hes 15 1/2 yrs old

 

Melanie,

 

I am so happy for you and your son and family to finally be getting treatment. It might be worth an e-mail to Dr. K to discuss dosing levels. He is very particular and since he has had more success than anyone there might be some value in his approach. Good luck, Alex

[melanie]

Way to go Melanie--you have been through alot, so here is hoping for the best for you, Danny and your family. Hope you have a good weekend.

 

Deanna

 

 

Hi

 

Hes all done for today it took about 4 hours and no problems to report I have BCBS of NJ he is having privigen 10% Liquid 60 grams=600ml to be infused 3-4 hrs once every 3 weeksvia vista pump

 

Dx is selective Ig deficiency

cronic condition is PANDAS

 

Melanie,

How much does Danny weigh?

 

 

He is 5'9 and weighs 140-145 Hes 15 1/2 yrs old

 

Melanie,

 

I am so happy for you and your son and family to finally be getting treatment. It might be worth an e-mail to Dr. K to discuss dosing levels. He is very particular and since he has had more success than anyone there might be some value in his approach. Good luck, Alex

 

Hi Alex Ive spoken with him several times ..The md we are using works closely with Dr Swedo and I trust her more than anyone else . Shes treating many patients and were being treated for immune defiency,shes an immunologist.

 

melanie