How often do flare ups generally occur

[reneegavin]

I'm just wondering in PANDAS, how often do flare ups generally occur? My 12 yo dd, who has not been clinically diagnosed with anything, is usually fine for 2 weeks, then awful for 1-2 weeks. I'm not sure if at this point, it's related to PMS or something else. She's always had anxiety, but it never came and went before.

[MomWithOCDSon]

I'm just wondering in PANDAS, how often do flare ups generally occur? My 12 yo dd, who has not been clinically diagnosed with anything, is usually fine for 2 weeks, then awful for 1-2 weeks. I'm not sure if at this point, it's related to PMS or something else. She's always had anxiety, but it never came and went before.

 

Sorry, Renee, but I can't remember what your DD12's primary behaviors are . . . you mention anxiety. Are there tics? OCD? Separation anxiety? Is she currently taking antibiotics? Or any other meds? Is she being tested for strep when the cycles occur?

 

Based on experience with my DS12, I would say 2-week or even 4-week cycles seem very short, especially if they do not coincide with a medication cycle; I could understand her improving for 2 weeks while on abx, and maybe even "holding" for a week past that. But if there's no medication in the picture, then that seems like short-cycling for PANDAS behaviors. I suppose if she is constantly being re-exposed to strep, it's possible. But then it would seem as though she might be being exposed in the home.