mom_md - IVIG this week?

[Suzan]

Is today day 2 of IVIG for your ds? Thinking about you guys...

 

Susan

[mom md]

We got moved from Mon/Tues to today and tomorrow but are almost finished with the infusion and it has gone great. Bless Carter's heartt, he threw up in the lobby of the hospital on the way in because he was so nervous. There went all our pre-meds we took at home! He had a lot of anxiety but once we got the IV in he did great. They put emla cream on him and did a great job. The whole infusion will only take 3 hours. They are letting him go home with his IV in so he does not have to get stuck tomorrow. They are using Gamunex at a dose of 1gm/kg.

Our insurance company said that we have an 80/20 plan with a $2000 deductable. We have already met $1750 of it so they thought that is all we would pay. I was really nervous he would have some sort of allergic reaction given what happened with the FFP at Georgetown when we did PEX but he has had no issue at all. I am watching him right now eat chocolate ice cream and watch Scooby-doo.

Thanks for thinking of us.

[Suzan]

Wow, poor little guy! (about the throwing up!). I'm glad he is doing well and you too. Good luck tonight and tomorrow too.

 

Susan

[melanie]

We got moved from Mon/Tues to today and tomorrow but are almost finished with the infusion and it has gone great. Bless Carter's heartt, he threw up in the lobby of the hospital on the way in because he was so nervous. There went all our pre-meds we took at home! He had a lot of anxiety but once we got the IV in he did great. They put emla cream on him and did a great job. The whole infusion will only take 3 hours. They are letting him go home with his IV in so he does not have to get stuck tomorrow. They are using Gamunex at a dose of 1gm/kg.

Our insurance company said that we have an 80/20 plan with a $2000 deductable. We have already met $1750 of it so they thought that is all we would pay. I was really nervous he would have some sort of allergic reaction given what happened with the FFP at Georgetown when we did PEX but he has had no issue at all. I am watching him right now eat chocolate ice cream and watch Scooby-doo.

Thanks for thinking of us.

 

 

sO HAPPY TO HEAR THINGS ARE GOING WELL!!!