kids outgrow PANDAS?

[reneegavin]

I've been reading more about PANDAS, and it's looking like kids usually outgrow PANDAS between 12-16?? Has anyone seen this to be true? I'm not sure that my 12 yo dd has PANDAS, but she does seem to be having more relaxed time periods.

[reneegavin]

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[thereishope]

I think the honest answer is we really don't know. Many of the original kids dx with PANDAS in 1998 are probably just becoming adults. There are some parents who have revisted this forum after many years whose PANDAS kids are now young adults and they are good outcomes. That gives us hope.One just have to give everything they can now while their children are pre-puberty to try to set good groundwork for where their body and immune system will be when they enter puberty.

 

I also went to PANDAS Network and pulled these quotes....

 

http://www.pandasnetwork.org/prognosis.html

 

Will my child outgrow this?

 

There is currently no long-term prospective study on the outcome of this newly identified (1998) illness. However, in the near future, the NIMH will release an 8 year study, following 72 children. It will identify the physical and psychological outcomes of children with PANDAS versus typical OCD.

 

The information below is based on input from NIMH physicians and others who have treated PANDAS cases over the past ten years.

Then there is this quote at the end of the page..

 

 

Finally, there is the another 15% of the group that has gradually outgrown PANDAS at puberty and are now between 14-18 years old. They only remained on antibiotics throughout childhood with no IVIG or Plasma Exchange to lessen severity. Most of the parents have said their childhood was challenging and difficult on the family life. Their children had to be in special IEP classes in Grade School. Their doctors gave antibiotics periodically when strep was in the household or classroom environment or if they got a strep infection. They are not currently on prophylactic antibiotics post-puberty but are vigilant.

 

So, like I said do what you can now and never feel like you just have to wait it out. Nightly prayers are always helpful too.