New-Just Received the diagnosis & worried sick--have questions&#33

[nevergiveup]

I wouldn"t discount the ent's they don' t call the disease pandas but they sure know that kids have adhd and tics with lots of strep. Dr. Wood ( best but not at childrens ) he may be a good alternative. He knows a lot about behavorial changes and strep. He would be my first GO TO. Also Dr. Schott was the doc who after 2 years in neurology, saw my kid for chronic sinus infections and gave 6 months of cefdinir which put my child in remission for two years. She also did the IGG tests to check her immune system which finally led us to determine she had an immune deficiency causing her pandas. I liked her, we never specifically talked about pandas but she saw my childs medical records and I asked her to help if she could and she nodded. She gave her high dose abx for 6 months, I couldn't get anyone in cvg to consider this. Sorry I scared you on my last email, but I do think Gilbert is scary, very scary. Go see a specialist if you have the means to. Dr. K works too. I didn't mean to exclude him.

 

 

g

Did Dr Schott do a study on PANDAS? I remember Rutter referring to her. If you want to message me your ped's info, I will be happy to mail them the info I will be sending to other local docs. Perhaps yours is even already on my list if you live in Cinci. You don't have to let me know if you don't want to, but the offer is there if you want.

[MMWG]

I wouldn"t discount the ent's they don' t call the disease pandas but they sure know that kids have adhd and tics with lots of strep. Dr. Wood ( best but not at childrens ) he may be a good alternative. He knows a lot about behavorial changes and strep. He would be my first GO TO. Also Dr. Schott was the doc who after 2 years in neurology, saw my kid for chronic sinus infections and gave 6 months of cefdinir which put my child in remission for two years. She also did the IGG tests to check her immune system which finally led us to determine she had an immune deficiency causing her pandas. I liked her, we never specifically talked about pandas but she saw my childs medical records and I asked her to help if she could and she nodded. She gave her high dose abx for 6 months, I couldn't get anyone in cvg to consider this. Sorry I scared you on my last email, but I do think Gilbert is scary, very scary. Go see a specialist if you have the means to. Dr. K works too. I didn't mean to exclude him.

 

 

g

Did Dr Schott do a study on PANDAS? I remember Rutter referring to her. If you want to message me your ped's info, I will be happy to mail them the info I will be sending to other local docs. Perhaps yours is even already on my list if you live in Cinci. You don't have to let me know if you don't want to, but the offer is there if you want.