connecting the dots chx pox vaccine?

[amy s]

My dd saw one specialist who STRONGLY felt that her (2nd) chicken pox immunization played a role. (vaccine May 2007 then exposure to scarlet fever strep in June 2007- overnight explosion in symptoms August 2007)

[earnestfamily7]

I didn't even know they had a MMRV combo vaccine. My daughter was born in 2006. Thank goodness they didn't give that to her.

 

I live in Ohio and I don't even know if a second chicken pox is required. When I took my 6 year old PANDAS son to the ped, they wanted to give him a second one and I refused, but it wasn't mandatory. We had an increase in chicken pox I think 3 years ago around here involving a lot of 7 and 8 year olds. So, when I read that it's suppose to last 11 years...well...that's interesting.

 

Does anyone know if the MMRV is standard now? With the recent publication telling docs to combine all vaccines that they can, that one may be on the rise. Heavy sigh.

 

I live in OH too.... my youngest just turned 1 yesterday - I am going to pull his shot record! talking with my sister today she said you can request the shots be given seperately... and not have to the 'V' at all... but this all a little too late for me for the older kids... When I take my 1 year old to his well visit I will be aksing a TON of questions... I am sad that I was not smart enough to ask before... but then again how could we have known what our futures held!

[earnestfamily7]

My 5-1/2 year old son had his first appointment with Dr. Tanya Murphy this past week. Until 11/20/09 he had no symptoms of PANDAS. On 11/20/09 he developed facial/eye tics, shoulder shrugging. Later a slight choreiform movement in fingers.

 

On 11/10/09 my son had the H1N1 flu vaccine, nasal mist. on 11/11/09 he played for several hours with another child who was diagnosed a day later with strep throat. Strep had also been active in his kindergarten class. My son has never had strep and is seldom sick. Dr. Murphy suggests he may have an over-active immune system and that being exposed to H1N1 live bacteria and strep at the same time may have initiated the tics/PANDAS.

 

Thanks to the internet and these boards especially, I realized on Dec 16th that he might have strep although he showed no symptoms, but he had complained of a sore throat a couple of weeks before. However, it was a weekend and when I took him to the clinic the next day his throat showed clear. (I noticed small red dots the night before in throat). The clinic did not test for strep. Nor did the ER on 11/20 or the pediatrician appt on 11/24.

 

I post because I strongly feel the H1N1 vaccine somehow, helped trigger the tics. My gut instinct to not get the vaccine has proven correct. And, as we all know, the clock cannot be turned back.

 

Dr. Murphy changed my son's Augmentin ES prescription (prescribed by pediatrician) to regular Augmentin and has recommended we add Vitamin D, increase magnesium, add Omega-3 and continue with multi-vitamin. My son's lab work was done Thursday. I do not know if we will have the results prior to our follow-up appt on the 27th.

 

The antibiotic has greatly diminished my son's tics. They are still there, but not noticeable to most people. Some days are near perfect, others not so perfect. It is not appropriate for me to complain when I read some of the other stories on this board. However, I am consumed by what is currently happening in my son's life...

 

-Donna

 

Donna -

I am so sorry that you are going through this! It is scary and it does completely 'suck' that we cant turn back the clock to redo or undo what may have started all of this. But the good thing is that you found this board... it took me a long time to find it and I am so relieved that I have a place to sound off and be heard and helped! It sounds like you have a good start in fighting the battle! It is amazing what the vaccinations can do - I agree that I will never again say yes to whatever shot is recommended 'just because it is what is protocal'. I have 5 kids... as of today all of the their immunizations are up to date... but I ahve a 9yr old w/PANDAS a 7 year w/ suspected PANDAS a 5yr old with 'something going on' and the jury i out on what will happen with the 2 and 1 year olds!

 

I too feel consumed - how can we not... they are our children! and they are being controlled by something out of our control and for most of us out of our complete understanding. I know that I will keep fighting the drs until my children are well... just like everyone else on this board.

 

Prayers and Hugs to you and your family!

Steph