ENT appt. - sinus surgery

[wornoutmom]

Had our ENT appt today. He gave ds a 30 day script for Omnicef 600mg (thank God!!) and recommended sinus surgery (forget the exact name but amounts to a clearing or tissue and putting in "windows" for drainage). He also did a nasal swab to see what kind of bacteria is in there and if perhaps we should have those results by Monday. He may prescribe a different abx if it is indicated. I am SO interested in that result. I did not schedule the surgery, as I want to do some thinking about it before signing on, and wondering what Dr L will have to say about that. If we decide to delay surgery, ENT will keep him on antibiotics should he flare up again after 30 days, but won't do it indefinitely. Meanwhile, we've got a script and another chance to document behaviors before seeing Dr. L. Most of all, his suffering may abate soon. (and I have this uncontrollable urge to run to the pediatrician's office and stick out my tongue at her "virus").

 

Do any of you have thoughts on this surgery? If PANDAS responds to long term abx and Dr. L is willing to go this route, maybe the surgery will be unneccessary? Or if this is where the bacteria is hiding out, maybe this surgery could lead to remission/recovery? Seems like this will be a shorter term fix, with the longer term issue of the immune issue should he be exposed to bacteria in the future. For those of you on long term abx, what have the docs told you about the complications of long term use re: immune suppression and becoming resistant to antibiotic classes in the future?

[sf_mom]

Pockets of strep could be any where in the body and you may never find where it is located. They spent month trying to eradicated the strep from our son's friend who had RF at time of playdate in 2007 with no success. They removed his adenoids, the swollen gland resolved but the strep persisted. I think if you attack the overall PANDAS issue aggressively and support his immune system he should eventually be able to manage the level of bacteria in his body independently. I would wait to consult with Dr. Latimer first..... you are in good hands with her.

 

-Wendy