Good results 13 days post T & A! Yah!

[Joan Pandas Mom]

I hope everyone had a good Christmas or as good as can be with sick children. My son seems to be doing better, I'd guess about 50-60% better 13 days post T&A. The quick, jerky body movements (he said are compulsions not tics because he is doing them due to an obsession) have stopped. I asked if he was doing better because he was having less obsessions and he said yes, and reminded me his didn't like talking about it! We go for a repeat MRI with contrast tomorrow. There was a white spot on his last one that the Neuro here (who doesn't "buy into PANDAS" is referring him to Dartmouth Hitcock to followup there for MRI results. I will create a new topic but if anyone reading this one has seen Dr. Hyder at Pedi Neuro Datmouth Hitcock what do you think? I called and the receptionist there told me he had worked with PANDAS kids before.

[thereishope]

I'm glad you're seeing improvement! Is he on antibiotics right now?

[memom]

I'm glad you are seeing results. That was the timeframe for my dd17 last August to see improvement. I hope you get to 100%.

[kcdc3]

Forgive me for being dumb here, but what exactly are they doing an MRI on?

My dd's doc has briefly mentioned a T & A due to swollen tonsills, but not actively looking at it at the moment.

[Joan Pandas Mom]

I'm glad you're seeing improvement! Is he on antibiotics right now?

 

Yes, the ENT switched him to clindamycin HCL 150 mg 4 times a day. He isn't treating him for PANDAS though. I'm still waiting to get into a few Dr. I have read about here. The 10 days ran out so we went back to Azith 2 days ago that he was on for 2 days prior surgery and before that 7 weeks of Augmentin 2000 XR without any improvement. I think the Clindamycin worked well. Have you tried it?

[Joan Pandas Mom]

I'm glad you are seeing results. That was the timeframe for my dd17 last August to see improvement. I hope you get to 100%.

 

Thank you so much. PANDAS is a tough one as you well know.

[Joan Pandas Mom]

Forgive me for being dumb here, but what exactly are they doing an MRI on?

My dd's doc has briefly mentioned a T & A due to swollen tonsills, but not actively looking at it at the moment.

 

He had a concussion about 10 weeks ago and the MRI is a follow up with contrast this time.