Pediatrician Consult to Discuss PANDAS

[Tattoomom]

I have an appointment for just me to discuss PANDAS with our Pediatrician. I really want to go in there armed with information, especially since she solely relies on strep cultures & titers for diagnosis, and his are negative.

 

Can you guys help me get prepared for this?!

[mama2alex]

Here's the link to a thread I started on this topic a few weeks ago:

 

http://www.latitudes.org/forums/index.php?showtopic=6264

 

Hope that helps!

[dut]

Look through the pinned threads "helpful info for PANDAS" at the top of the forum. Nos. 2 -4 are especially helpful for you as they discuss titers and how they can be negative and it still be PANDAS

[thereishope]

I agree to use the pinned threads for reference. Also look at www.pandasnetwork.org. There's good info on there.

 

Specifically, look at Buster's Fact page...

 

http://www.latitudes.org/forums/index.php?showtopic=6265

 

This is part of it that I think would be useful for you. I highlighted the sentence....

 

 

 

A throat culture for Group A Beta-Hemolytic streptococcus (GABHS) at time of exacerbation onset is recommended to diagnose a pharyngeal streptococcal infection [swedo2004]. If the culture is negative, a blood test may be able to test for streptococcal exotoxins. A common blood test is Anti-Streptolycin O. While this test can confirm a previous strep infection, it cannot exclude a prior infection or a diagnosis of PANDAS. This test is affected by many factors and in one study over 46% of children did not have a rising ASO titer despite having colonized strep [shet2003].

 

For children affected by PANDAS, a GABHS infection is considered to be the triggering event that causes an initial episode. However, as is the case with Sydenham's Chorea, subsequent PANDAS exacerbations may be triggered by recurrent GABHS, or by other bacterial or viral infections (ear infections, sinusitis, pneumonia, meningitis, impetigo) further complicating diagnosis [swedo1998]. [/indent]

 

[/indent]

[smartyjones]

i like the info on dr k's website - webpediatrics.com. i made a copy and highlighted all the symptoms he had.