Does any PANDAS Kid have mouth opening?

[CZL]

Hi,

 

Does any of PANDAS kid have mouth opening? My son has been doing that for more than a month. After I started him on "Augmentin" 2000 mg/day two month ago, he showed obvious improvement, then I started to taper down slowly his psych meds and SSRI med. About maybe a week or two later, he started the mouth opening --- as wide as possible, then after mouth opening each time he hit his face with fist. At that time his mood was still good, so it did not bother him at all. We continued tapering down those meds, his mouth opening always there, face hitting always there as well, till now his psych med is weaned off completely only still ON about 8mg Paxil ( Seroxat, SSRI med). During psych med tapering down, his mood was getting upsetting/irritable gradually. Now his mouth opening still there but not as wide as before, but it is still there, and jaw movement also shows up. This jaw movement is so frequent. face hitting is still there. He said he does not feel good the muscle and joint on face. This upsets him a lot. His mood is getting worse.

What are these? Tic? OCD? or tardive dyskinesia?

 

Does any of you ever experienced this?

 

Thanks, Merry Christmas to you all.

Jack

[peglem]

When my daughter was about 8 years old, she did this mouth opening/jaw popping thing, looked like she was trying to depressurize her ears. The doctor said they did have fluid behind the eardrum, but no infection. I wonder, though, if your son has inflammation in his temporal mandibular joint, or the nerve. I'd have the dentist check it.

[CZL]

When my daughter was about 8 years old, she did this mouth opening/jaw popping thing, looked like she was trying to depressurize her ears. The doctor said they did have fluid behind the eardrum, but no infection. I wonder, though, if your son has inflammation in his temporal mandibular joint, or the nerve. I'd have the dentist check it.

 

peglem, I am quite sure his mandibular joint is hurt already. but I think it caused by his mouth opening and hitting. It does not look like he is trying to depressurize her ears either. He said he does not feel anything wrong in ear. well, maybe I should find dentist to check it.

was your dd ON any meds at that time she did mouth opening/jaw popping?

Thanks.

[peglem]

Hard to remember about the meds, she may have been on risperdal at the time. This has been about 7 years ago.

[familyof4]

My son who has PANDAS does the face hitting thing. My daughter, who is 9 and never had PANDAS symptoms that I was aware of, started this mouth opening thing this fall that almost looked like a slow motion yawn. When I finally pointed it out to her she said "Yeah my friends have commented that I do it a lot". I asked her why she did it- she didn't know. I asked her if she had control over it and was able to stop in about a week. She has never had strep to my knowledge.

[harmony]

Hi,

 

Does any of PANDAS kid have mouth opening? My son has been doing that for more than a month. After I started him on "Augmentin" 2000 mg/day two month ago, he showed obvious improvement, then I started to taper down slowly his psych meds and SSRI med. About maybe a week or two later, he started the mouth opening --- as wide as possible, then after mouth opening each time he hit his face with fist. At that time his mood was still good, so it did not bother him at all. We continued tapering down those meds, his mouth opening always there, face hitting always there as well, till now his psych med is weaned off completely only still ON about 8mg Paxil ( Seroxat, SSRI med). During psych med tapering down, his mood was getting upsetting/irritable gradually. Now his mouth opening still there but not as wide as before, but it is still there, and jaw movement also shows up. This jaw movement is so frequent. face hitting is still there. He said he does not feel good the muscle and joint on face. This upsets him a lot. His mood is getting worse.

What are these? Tic? OCD? or tardive dyskinesia?

 

Does any of you ever experienced this?

 

Thanks, Merry Christmas to you all.

Jack

[My son had the jaw popping and teeth grinding with his last exaccerbation- it is the only thing that is still lingering, it is barely noticable now. He was not on any meds except antibiotics. The neuro said it is a complex motor tic.

But Years ago- I was on an SSRI (Paxil)- I had to quit because it made me do the same thing, and it took a while to wear off once I stopped the meds. Come to find out, it is a very common side effect. I would look at your sons SSRI side effect list- and see if it is on there.]

Hope this helps!

Merry Christmas

[CZL]

My son who has PANDAS does the face hitting thing. My daughter, who is 9 and never had PANDAS symptoms that I was aware of, started this mouth opening thing this fall that almost looked like a slow motion yawn. When I finally pointed it out to her she said "Yeah my friends have commented that I do it a lot". I asked her why she did it- she didn't know. I asked her if she had control over it and was able to stop in about a week. She has never had strep to my knowledge.

 

familyof4, how did you fix face hitting for your son? Is it one of PANDAS symptom?

[CZL]

[My son had the jaw popping and teeth grinding with his last exaccerbation- it is the only thing that is still lingering, it is barely noticable now. He was not on any meds except antibiotics. The neuro said it is a complex motor tic.

But Years ago- I was on an SSRI (Paxil)- I had to quit because it made me do the same thing, and it took a while to wear off once I stopped the meds. Come to find out, it is a very common side effect. I would look at your sons SSRI side effect list- and see if it is on there.]

Hope this helps!

Merry Christmas

 

So, Paxil made you do the jaw popping? Any experience for Paxil weaning off?

His cheek/mouth biting is creeping back a little bit, this is so fearful, sigh...