Confused again

[melanie]

Ok so Dr S called back he wont do it because the approval from the insurance came from Dr Triffeletti OMG I cant take this anymore I hope Dr T calls me back Im so upset unbelieveable I think this is crap

 

melanie

It's a whole load of crap!!!! The big hurdle is supposed to be the insurance! I'm praying that this is all settled soon and your son is on his way to recovery quickly!

 

 

Thanks Peg

 

This is so not even funny I cant believe this is going on Im sick !! This has really stumped me .I hope Dr T calls back Hey Peg would you do the infusions at home?\\

I would not do the infusions at home (I was a teacher, until I had to resign to take care of my daughter). But, if you are comfortable doing them at home...I'm just not, because I don't know what I'm doing. Do you think you can do it yourself? I've heard of people with MS who do their own infusions.

 

 

I wouldnt do it I would have an infusion company do it Im in contact with one now hopefully Triffiletti will continue to treat him at home

[peglem]

Oh, yeah, if I had professionals who knew what they were doing, I'd have it done at home. I'd just need to be sure they are prepared to handle it if anything goes wrong. I don't know what the possible complications might be, but maybe someone with IVIG experience will chime in here w/ how safe they think that might be.

[thereishope]

Oh, sweetie, I am so sorry. There's still time for a Christmas miracle, right? I've experience 2 very bad, very depressing Christmases before. Only one was as a mother though. All I can say is if you have to, try your hardest to put on that "happy face" for your kids. Really try hard not to let them know you're depressed because of what is going on. You don't want to chance him feeling responsible for your sadness. I want to say be open and honest with him, but kids and teens can carry a lot of guilt even when it does not have any merit to be there.

 

View the holidays as the start of a new beginning for your family. It will all come together. You are in the midst of a turning point. Granted, it may not be resolved right now, but you are on your way.

 

I sure hope you get your Christmas miracle.

 

 

Why does life have to be such a soap opera?

 

No one would believe this stuff if we told it to them. Little do people know how poorly the lives of children are being handled by some of the medical community.

 

 

And its christmas I was sooo greatful 2 days ago singing dancing .I was even happy that my mother in law was comming haha Now I hate everyone and everthing even christ,mas I am a teacher and Im off for the next 2 weeks most people would be happy I wish it wasnt the holidays because everyone is off and no one can help me I am sad

 

Melanie

[melanie]

Oh, sweetie, I am so sorry. There's still time for a Christmas miracle, right? I've experience 2 very bad, very depressing Christmases before. Only one was as a mother though. All I can say is if you have to, try your hardest to put on that "happy face" for your kids. Really try hard not to let them know you're depressed because of what is going on. You don't want to chance him feeling responsible for your sadness. I want to say be open and honest with him, but kids and teens can carry a lot of guilt even when it does not have any merit to be there.

 

View the holidays as the start of a new beginning for your family. It will all come together. You are in the midst of a turning point. Granted, it may not be resolved right now, but you are on your way.

 

I sure hope you get your Christmas miracle.

 

 

Why does life have to be such a soap opera?

 

No one would believe this stuff if we told it to them. Little do people know how poorly the lives of children are being handled by some of the medical community.

 

 

And its christmas I was sooo greatful 2 days ago singing dancing .I was even happy that my mother in law was comming haha Now I hate everyone and everthing even christ,mas I am a teacher and Im off for the next 2 weeks most people would be happy I wish it wasnt the holidays because everyone is off and no one can help me I am sad

 

Melanie

 

Thank You Vickie that was very thoughtful.I know I have been testy .my husband says Im always snapping at him.Its very diffucult to watch your kid go through this.I love him so much .So close yet so far..OK Dr T I need you !!

 

melanie

[melanie]

Oh, yeah, if I had professionals who knew what they were doing, I'd have it done at home. I'd just need to be sure they are prepared to handle it if anything goes wrong. I don't know what the possible complications might be, but maybe someone with IVIG experience will chime in here w/ how safe they think that might be.

 

 

Dr T called YEA!!! everthing gonna be ok I love that DR!!!!

 

thanks for listening everyone

Melanie

[peglem]

Yay!!!!!

[thereishope]

Your Christmas miracle has come!

 

You can be testy with your husband. that's okay:)

[melanie]

Your Christmas miracle has come!

 

You can be testy with your husband. that's okay:)

 

Ill Let my husband know you said it ok LOL

 

Merry Christmas