Confused again

[melanie]

Ok so the insurance company approved the IV and now the neurologist has to get the hospital to approve the procedure for the dx of immune deficient .Why why????? I have a feeling hes not going to do it for me.I also know that Im not going to know anything untill next week because of the holidays. What should I do? Why does this seem to get more diffucult.Should I go somewhere else

 

Now I have the insurance company who I hated last week who I like this week and DrT who got him approved.And Dr S who wanted to do the Iv again who now Im not so sure wants to do it now ,who wanted the insurance company to cover the iv and now they are see why im confused!!

 

HELP

 

Melanie

[peglem]

Well, I'm confused, too. Usually, the party who is to perform the procedure puts in for insurance reimbursement, so I have no idea what to do if you have the insurance approval, but no provider.

[melanie]

Well, I'm confused, too. Usually, the party who is to perform the procedure puts in for insurance reimbursement, so I have no idea what to do if you have the insurance approval, but no provider.

 

I just spoke with dr S office now it seems he wants Dr T to have the IV done as a home infussion I give up I thought everything was going to be ok now Its not

[peglem]

So, what if you go to your insurer website and find in-network immunologists. See if they'll do the IVIG for you. Explain that the doctor who prescribed it is out of state, so you're looking for a local provider to fill the script.

[thereishope]

Oh, man. Hopefully this is just the final stretch of this whole ordeal and all will be better soon.

[melanie]

Oh, man. Hopefully this is just the final stretch of this whole ordeal and all will be better soon.

 

I just called Dr T and left him a message hopefully he will call me back.I know that the 1st Neurologist Dr S is insulted that Dr T got it approved they dont understand how he did it I said who cares how the point is you told me it had to be approved before we went forward. Ok so were approved .NOw thats not good enough Dr S's office said they are going to call me before the day is over so hopefully they do I highly doubt it,

 

It never ends

 

Melanie

[peglem]

Oh, man. Hopefully this is just the final stretch of this whole ordeal and all will be better soon.

 

I just called Dr T and left him a message hopefully he will call me back.I know that the 1st Neurologist Dr S is insulted that Dr T got it approved they dont understand how he did it I said who cares how the point is you told me it had to be approved before we went forward. Ok so were approved .NOw thats not good enough Dr S's office said they are going to call me before the day is over so hopefully they do I highly doubt it,

 

It never ends

 

Melanie

Sounds to me like Dr. S told you that as a way to refuse to do it (boy did he underestimate you!), without taking responsibility for refusing...he thought you'd never be able to get it approved thru insurance. It'd be comical if it wasn't your child's treatment on the line!

[melanie]

Oh, man. Hopefully this is just the final stretch of this whole ordeal and all will be better soon.

 

I just called Dr T and left him a message hopefully he will call me back.I know that the 1st Neurologist Dr S is insulted that Dr T got it approved they dont understand how he did it I said who cares how the point is you told me it had to be approved before we went forward. Ok so were approved .NOw thats not good enough Dr S's office said they are going to call me before the day is over so hopefully they do I highly doubt it,

 

It never ends

 

Melanie

Sounds to me like Dr. S told you that as a way to refuse to do it (boy did he underestimate you!), without taking responsibility for refusing...he thought you'd never be able to get it approved thru insurance. It'd be comical if it wasn't your child's treatment on the line!

 

 

Do you even believe this crap OMG now what I hope Dr T comes through I will do it at home or should I just go somewhere but where I have the approval Im afraid if I go to another md my insurance comp will be like hummm

[melanie]

Ok so Dr S called back he wont do it because the approval from the insurance came from Dr Triffeletti OMG I cant take this anymore I hope Dr T calls me back Im so upset unbelieveable I think this is crap

 

melanie

[mama2alex]

Sounds to me like Dr. S told you that as a way to refuse to do it (boy did he underestimate you!), without taking responsibility for refusing...he thought you'd never be able to get it approved thru insurance. It'd be comical if it wasn't your child's treatment on the line!

 

I agree. It sounds like Dr. S wasn't being straightforward, and has now set you back and wasted your time. I also agree you might want to consider finding an immunologist in your area to work with. I don't know how often neurologists prescribe IVIG, but immunologists do it all the time. They don't see it as a big deal, and if another doctor who specializes in PANDAS has already recommended it, they would hopefully being willing to write the scrip. I'm sure this is so incredibly frustrating, to think you are so close, and then have to wait - AGAIN. Hang in there!

[peglem]

Ok so Dr S called back he wont do it because the approval from the insurance came from Dr Triffeletti OMG I cant take this anymore I hope Dr T calls me back Im so upset unbelieveable I think this is crap

 

melanie

It's a whole load of crap!!!! The big hurdle is supposed to be the insurance! I'm praying that this is all settled soon and your son is on his way to recovery quickly!

[thereishope]

Why does life have to be such a soap opera?

 

No one would believe this stuff if we told it to them. Little do people know how poorly the lives of children are being handled by some of the medical community.

[melanie]

Ok so Dr S called back he wont do it because the approval from the insurance came from Dr Triffeletti OMG I cant take this anymore I hope Dr T calls me back Im so upset unbelieveable I think this is crap

 

melanie

It's a whole load of crap!!!! The big hurdle is supposed to be the insurance! I'm praying that this is all settled soon and your son is on his way to recovery quickly!

 

 

Thanks Peg

 

This is so not even funny I cant believe this is going on Im sick !! This has really stumped me .I hope Dr T calls back Hey Peg would you do the infusions at home?\\

[melanie]

Why does life have to be such a soap opera?

 

No one would believe this stuff if we told it to them. Little do people know how poorly the lives of children are being handled by some of the medical community.

 

 

And its christmas I was sooo greatful 2 days ago singing dancing .I was even happy that my mother in law was comming haha Now I hate everyone and everthing even christ,mas I am a teacher and Im off for the next 2 weeks most people would be happy I wish it wasnt the holidays because everyone is off and no one can help me I am sad

 

Melanie

[peglem]

Ok so Dr S called back he wont do it because the approval from the insurance came from Dr Triffeletti OMG I cant take this anymore I hope Dr T calls me back Im so upset unbelieveable I think this is crap

 

melanie

It's a whole load of crap!!!! The big hurdle is supposed to be the insurance! I'm praying that this is all settled soon and your son is on his way to recovery quickly!

 

 

Thanks Peg

 

This is so not even funny I cant believe this is going on Im sick !! This has really stumped me .I hope Dr T calls back Hey Peg would you do the infusions at home?\\

I would not do the infusions at home (I was a teacher, until I had to resign to take care of my daughter). But, if you are comfortable doing them at home...I'm just not, because I don't know what I'm doing. Do you think you can do it yourself? I've heard of people with MS who do their own infusions.