FallingApart Posted December 18, 2009 Report Posted December 18, 2009 Hello, I haven't been on the boards much because we are in a place where we are trying to heal somewhat! Things have actually improved for us! I am shocked and didn't think that we would get here. I think it is a combination of the IVIG and also a new therapy we have started called ABA therapy. I had never heard of this until recently but our neuro psych recommended we get help from them. I really wish we would have started with them in our darkest times. We actually started with them at the very beginning of DDs recovery period. I'm still not entirely sure what all ABA does. But they have been coming to our house and helping us deal with our most difficult issues. DD would never listen to us in the middle of a rage. But after a while, she will listen to the ABA people. And the good part is that she will remember it even after they have left and the situation comes up again. Now, if we were in our darkest moment, I don't know if she would remember these new skills or not. But so far, this has helped us. Has anyone else done ABA? Has it been useful in the middle of a full blown exacerbation?
peglem Posted December 18, 2009 Report Posted December 18, 2009 Oops! I answered on the "how much abuse" thread!
sf_mom Posted December 18, 2009 Report Posted December 18, 2009 I am so happy to hear a positive update!!! Congratulations, on making it this far along in recovery. Are you doing monthly IVIG now?
FallingApart Posted December 18, 2009 Author Report Posted December 18, 2009 Yes, we are doing monthly IVIG. IN fact we just checked in today for our second infusion. This will actually be our 4th IVIG but is the first one we have ever actually planned!
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now