Please not my son too!

[britneymag]

I need someone to bounce things off of. Let me know what you think.

 

My dd (9) has had PANDAS symptoms since she was 4 or earlier. We just started treating it as such a couple of months ago. Before we were told that it was Tourette's and SID. We have always been so focused on getting her well that I think we may have overlooked my son (8).

 

A couple of years ago my ds started this little snort but his sinuses were acting up so we put him on Antibiotics and the snort went away so I dismissed it. It happened again last year and again I dismissed it. I thought he was in the clear because I never did his 4 year immunizations because our dd started ticcing like crazy after hers and I thought that is what had caused all of her issues.

 

Well, about 4 months ago my ds started grabbing his crotch and after a week of it he started screaming one night saying that it burned really bad. When we looked at it, it was swollen really bad. My dh took him to a clinic and they gave him an antibiotic saying that he might have had an ant bite or an infection from not cleaning it well. (He is 7 so we believed that of course he wasn't cleaning it well.) I wonder now if it wasn't strep. Anyway, his swelling went down but he continues to grab himself and tells us that he can't help it. He also developed a rash during the Thanksgiving holiday's and a sore throat but it didn't look like strep and the rash didn't really look like scarlet fever. About a week after the sore throat he started whistling. Now he will say a couple of words and then he will whistle. He will even be crying and whistle in the middle of it.

 

We have always noticed his pupils being large and he has always had dark circles under his eyes that we thought were just from allergies. He is now acting out at school and hitting girls and also when ever he gets hurt or when he and my dh are playing around and my dh gets him a little too hard he starts screaming bloody murder. When I run to him he just clings to me like he is terrified. He will then quickly calm down but will still cling to me.

 

Does this sound like PANDAS to y'all? I thought since he hadn't shown symptoms when he was younger that we didn't have to worry about it but I am reading on here that so many of y'alls kids are starting their symptoms around his age.

 

Melanie

[Suzan]

I hate to say it but it does sound suspect to me, especially since you have another child with PANDAS. Can you get him on a longer term round of antibiotics? Can you take him to the doc who is treating your dd? Where do you live?

 

Susan

[britneymag]

I am in Texas and have an appt with a neurologist in February for my dd. Right now her regular Dr. has her on antibiotics but only after the research that I have given him. He knows nothing about the disorder. I really think he would think I had gone off the deep end if I now came to him with my ds and asked for antibiotics. He has been very helpful and understanding but I don't want to push him too far.

 

DD has prescriptions for the next couple of months and i am thinking of giving them to my son too. She will run out sooner but maybe I can beg for more for her.

 

I so didn't want him to have to go through this too:(

 

Melanie

[momto2pandas]

Do you think his "crotch" symptoms may be interstitial cystitis? Is he peeing frequently? IC goes along with this "anxiety" spectrum, I think.

 

I am in Texas and have an appt with a neurologist in February for my dd. Right now her regular Dr. has her on antibiotics but only after the research that I have given him. He knows nothing about the disorder. I really think he would think I had gone off the deep end if I now came to him with my ds and asked for antibiotics. He has been very helpful and understanding but I don't want to push him too far.

 

DD has prescriptions for the next couple of months and i am thinking of giving them to my son too. She will run out sooner but maybe I can beg for more for her.

 

I so didn't want him to have to go through this too:(

 

Melanie

[thereishope]

Did you get the family checked for strep? I would take him for a strep test. Your "story" reminds me a little of Lauren Johnson and the sneezing tic. It started out as a cold with the motion of real sneezing. It then morphed into a tic or OCD habit. Like what you are describing about the crotch grabbing.

 

 

There have also been I believe 2 other kids on here with "picking" issues, specifically with the rear end.

 

 

Also, remember, a child does not have to have classic symptoms of strep to have strep.

[britneymag]

Do you think his "crotch" symptoms may be interstitial cystitis? Is he peeing frequently? IC goes along with this "anxiety" spectrum, I think.

 

I am in Texas and have an appt with a neurologist in February for my dd. Right now her regular Dr. has her on antibiotics but only after the research that I have given him. He knows nothing about the disorder. I really think he would think I had gone off the deep end if I now came to him with my ds and asked for antibiotics. He has been very helpful and understanding but I don't want to push him too far.

 

DD has prescriptions for the next couple of months and i am thinking of giving them to my son too. She will run out sooner but maybe I can beg for more for her.

 

I so didn't want him to have to go through this too:(

 

Melanie

 

I hadn't really thought of anything like that. I was thinking that maybe it was a tic because he tells us that he can't help it. I haven't noticed him having to urinate more often. It hasn't been red and swollen since that one time we got the antibiotics but he is grabbing it every 5 seconds or so. He doesn't scratch he just grabs. Whenever he wears kacki's to school, we have to douse the front with spray and wash before we wash them LOL!!!

 

Melanie

[lss]

I am in Texas and have an appt with a neurologist in February for my dd. Right now her regular Dr. has her on antibiotics but only after the research that I have given him. He knows nothing about the disorder. I really think he would think I had gone off the deep end if I now came to him with my ds and asked for antibiotics. He has been very helpful and understanding but I don't want to push him too far.

 

DD has prescriptions for the next couple of months and i am thinking of giving them to my son too. She will run out sooner but maybe I can beg for more for her.

 

I so didn't want him to have to go through this too:(

 

Melanie

 

Melanie,

 

If you don't mind me asking, where in Texas are you? I may have names of a few doctors for you.

 

Linda

[britneymag]

I am in between Austin & San Antonio.

 

Melanie