Tonsillectomies and extremely high ASO titers

[Joan Pandas Mom]

Has anyone had their child's tonsils removed with very high ASO Titers? My son's are some number above 800. The lab test only went as high as 800. He is scheduled for surgery on Tuesday AM. I know there is a lot of controversy over the Titer # but I believe it is related to my son's symptoms. Is undergoing surgery while these antibodies are going haywire a good idea?

[Diana]

Joan - my son had a T&A with titers just like that (about 600). Our ENT's partner - his son had pandas and did the T&A. They kept my son (age 7 then) on Azithro which he had been on for two months and it had much improved his pandas symptoms. So, Kept him ON the Azithro and followed with 5 days of PREDNISONE (liquid form). They explained this would keep inflammation down and speed healing. They also said "It will help the Pandas."

 

At that time I didn't understand the significance of that -- but, there we had ZERO issues during and after the surgery and in repairing. In fact, he responded beautifully to thw prednisone and we were symptom-free of PANDAS for about 2 weeks after that. Hope this helps. diana

[Joan Pandas Mom]

Thanks Diana,

This has helped. Thank you. Was this improvement recent and still current? Good luck with all of this.

Joan