need doctor; we're near Nashville but will travel

[TracyRee]

Can anyone recommend a great doctor for my 5yo suspected PANDAS? I need a doc that knows about all this as I'm overwhelmed.

 

I looooove our current doctor, but he doesn't seem to get PANDAS. He's heard of it and saw himself that DS's cumpulsive urination that lasted 3 weeks went away after 3 days of abx after a positive strep culture. It just seems he thought it was an isolated episode and not something we need to stay on top of. (Maybe he's right, but I NEED to be sure)

 

 

So I need a doctor that can help us wrap our heads around this. Can anyone recommend someone? Of course ideally we'd like somone local (closest large city is Nashville). Will travel if need be.

[Suzan]

Can anyone recommend a great doctor for my 5yo suspected PANDAS? I need a doc that knows about all this as I'm overwhelmed.

 

I looooove our current doctor, but he doesn't seem to get PANDAS. He's heard of it and saw himself that DS's cumpulsive urination that lasted 3 weeks went away after 3 days of abx after a positive strep culture. It just seems he thought it was an isolated episode and not something we need to stay on top of. (Maybe he's right, but I NEED to be sure)

 

 

So I need a doctor that can help us wrap our heads around this. Can anyone recommend someone? Of course ideally we'd like somone local (closest large city is Nashville). Will travel if need be.

 

How far are you from Charlotte, NC? There are some here who are not specialists but who do have experience and will treat. If you can't find anything closer, that might be an option.

 

Susan