LovingMJ Posted November 12, 2009 Report Posted November 12, 2009 Should I make an appointment with ped neurologist (one that was rec here) WITH OUT seeing my ped first? My son has never had a strep test done before. I have no back up...at all. Can I go see this neurologist and tell him of my sons history and that I think he has PANDAS? Or, will this doc think I am NUTS?
thereishope Posted November 12, 2009 Report Posted November 12, 2009 First make an appt with your pediatrician and have a strep test done. If rapid comes back negative, make sure it is cultured. Also tell them you want his titer levels checked. When you call to make the appt, just say you want to have a strep test done on your son. You don't really have to give a lengthy explanation to the receptionist. To be honest, she'll just tune you out. You can explain to your ped what you think is going on once you are there. Do you know of a neurologist in your area? If not, look at the need thread of doctor names and/or posts where you live. Today or tomorrow, call and make an appt with the neurologist. Tell them you suspect your son has PANDAS. You pediatrican may help you with this or have a recommendation. It varies what they are willing to do. I say go to your ped first because the neurologist will want to know the results of the tests and it may be a wait for an appt. You'll be bale to get into the ped's office today or tomorrow. If your son has an active strep infection, it needs to be dealt with asap. While you're at it, make an appt for family members to get checked for strep. Again, if rapid comes back neg, make sure they culture it.
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