FallingApart Posted October 31, 2009 Report Posted October 31, 2009 We realized we had a serious problem at 3 years and 2 months. I was at a loss to figure out what it could be. I had considered PANDAS because it came on so extreme and so suddenly, but at that time I dismissed it because DD didn't have strep. Now that I know what I know, we are clear that this is PANDAS and both myself and our ped believe she got this for the first time at 9 months!!! This board is so helpful in telling me what other tests to look for and treatments to do. I feel we have one of the extreme cases and I am hopeful that all of your advice and the hard work of our ped and the other specialists will all pay off when we go for PEX next week. We will be in the hospital receiving PEX on DDs 4th bday.
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