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Posted

Hello:

 

Has anyone who has run the immunology blood work come up with high lymphocyte subset panel numbers?

 

My son had 3 of the numbers in the very high range and the immunologist says this means he is fighting something (in our case, it happens to be viruses). I wonder if these numbers would be high if your child was fighting a strep infection as well. I am having a hard time getting good information on the internet and was wondering if anyone else has more knowledge about this type of blood work??

 

Thanks,

 

Elizabeth

Posted
Hello:

 

Has anyone who has run the immunology blood work come up with high lymphocyte subset panel numbers?

 

My son had 3 of the numbers in the very high range and the immunologist says this means he is fighting something (in our case, it happens to be viruses). I wonder if these numbers would be high if your child was fighting a strep infection as well. I am having a hard time getting good information on the internet and was wondering if anyone else has more knowledge about this type of blood work??

 

Thanks,

 

Elizabeth

Hey Elizabeth,

 

How is he doing? Any more improvements since the 2nd IVIG??

 

We had very high range numbers on CD3 & 4 and the lowest number possible within range for CD8. The percentage ranges came back as elevated & low on CD8. We were also told it meant an infection and not to worry about it. I also had trouble finding info on the internet.

Posted

Yes, we went from a 60% improvement to about an 80% improvement after the 2nd IVIG, which was a very small 2 1/2 hour dose. Now, you always have to wonder if Quinn would have improved on his own this much, but in a longer time frame without the second dose. We plan on doing 5 more smaller doses and then hopefully, his immune system will not need any more. We are now able to go out in the world and his day time OCD is almost absent. I don't think he has any more tics, which were our secondary issue anyway. We still have a rough night here and there and I don't understand why he has some setbacks in the middle of the night when he does so well during the day. He still urinates frequently, is a little hyper and sucks on his shirt ALL DAY.

 

But all in all, he is now a normally functioning child, whereas before he was crippled with severe OCD!!! So, I am thrilled that I found this web site along with all the valuable information and support from everyone!!

 

Elizabeth

Posted
Yes, we went from a 60% improvement to about an 80% improvement after the 2nd IVIG, which was a very small 2 1/2 hour dose. Now, you always have to wonder if Quinn would have improved on his own this much, but in a longer time frame without the second dose. We plan on doing 5 more smaller doses and then hopefully, his immune system will not need any more. We are now able to go out in the world and his day time OCD is almost absent. I don't think he has any more tics, which were our secondary issue anyway. We still have a rough night here and there and I don't understand why he has some setbacks in the middle of the night when he does so well during the day. He still urinates frequently, is a little hyper and sucks on his shirt ALL DAY.

 

But all in all, he is now a normally functioning child, whereas before he was crippled with severe OCD!!! So, I am thrilled that I found this web site along with all the valuable information and support from everyone!!

 

Elizabeth

 

Great news! Hopefully after the next round you'll see some of the other symptoms disappear too.

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