bubbasmom Posted October 26, 2009 Report Posted October 26, 2009 Okay, seriously I was told IVIG would take 5 or 6 hours each day for two days. UH, MAYBE NOT, try 11 hours each day! I was not prepared for that!
peglem Posted October 26, 2009 Report Posted October 26, 2009 Okay, seriously I was told IVIG would take 5 or 6 hours each day for two days. UH, MAYBE NOT, try 11 hours each day! I was not prepared for that! Oh, wow! How did it go otherwise?
bubbasmom Posted October 27, 2009 Author Report Posted October 27, 2009 first day went fine, no side effects other than they injected benedryl right off the bat and in about 10 minutes he was sound asleep. But it was good, the place doing this is very kind and nice and bent over backwards for us. We live in St. Louis so we have no doctor here that deals with PANDAS (which cracks me up because we have 15 MAJOR hospitals without ever leaving the city limits - then many suburban hospitals). So this hemotologist has just agreed to do this per Dr. K's specifications to save us another trip to Chicago. Okay, seriously I was told IVIG would take 5 or 6 hours each day for two days. UH, MAYBE NOT, try 11 hours each day! I was not prepared for that! Oh, wow! How did it go otherwise?
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