The power of viruses

[acdrobert]

We had an "interesting" experience, on Friday night. Thomas came home from school with acute big time PANDAS symptoms, the worst I have seen since IVIG last March. Ticcing ,separation anxiety and ADD symptoms...as bad as he gets. I panicked and called Dr. K who told me I could start another 5 doses of prednisone. (Prednisone has worked great for us in the past) Bingo ! by the second dose Thomas was back to his baseline of mild vocal tics and no ADD or separation anxiety. Yesterday I found out that on Friday 5 kids from his class were sent home with high fever and nausea and vomitting. SO.....he obviously got exposed to a strong yet short acting GI virus. Instead of having the usual viral symptoms (in this case fever, N and V), his body responded with PANDAS symptoms. Interesting........I am now convinced that he has some immune issues and I have made an appoiontment with Dr. O'Connor at Carolina Asthma and Allergy. Its a drive for me but at least when I tell her that Thomas has a high Cam Kinase score she will know what I am talking about. We get to go on October the 8th. Wish us luck !

 

 

Anne

[Suzan]

We had an "interesting" experience, on Friday night. Thomas came home from school with acute big time PANDAS symptoms, the worst I have seen since IVIG last March. Ticcing ,separation anxiety and ADD symptoms...as bad as he gets. I panicked and called Dr. K who told me I could start another 5 doses of prednisone. (Prednisone has worked great for us in the past) Bingo ! by the second dose Thomas was back to his baseline of mild vocal tics and no ADD or separation anxiety. Yesterday I found out that on Friday 5 kids from his class were sent home with high fever and nausea and vomitting. SO.....he obviously got exposed to a strong yet short acting GI virus. Instead of having the usual viral symptoms (in this case fever, N and V), his body responded with PANDAS symptoms. Interesting........I am now convinced that he has some immune issues and I have made an appoiontment with Dr. O'Connor at Carolina Asthma and Allergy. Its a drive for me but at least when I tell her that Thomas has a high Cam Kinase score she will know what I am talking about. We get to go on October the 8th. Wish us luck !

 

 

Anne

 

My dd8 has a canker sore and she is struggling right now. I think she picked up a virus in the hospital or at school last week. Her episodes always increase when she gets a canker sore and her separation anxiety is up too. I agree with you on the virus front. I'd like to give prednisone a try sometime. I'm glad you have made an appt. I hope you get some help from her. We go on the 16th I think. Keep us posted!

 

Susan

[ShaesMom]

We had an "interesting" experience, on Friday night. Thomas came home from school with acute big time PANDAS symptoms, the worst I have seen since IVIG last March. Ticcing ,separation anxiety and ADD symptoms...as bad as he gets. I panicked and called Dr. K who told me I could start another 5 doses of prednisone. (Prednisone has worked great for us in the past) Bingo ! by the second dose Thomas was back to his baseline of mild vocal tics and no ADD or separation anxiety. Yesterday I found out that on Friday 5 kids from his class were sent home with high fever and nausea and vomitting. SO.....he obviously got exposed to a strong yet short acting GI virus. Instead of having the usual viral symptoms (in this case fever, N and V), his body responded with PANDAS symptoms. Interesting........I am now convinced that he has some immune issues and I have made an appoiontment with Dr. O'Connor at Carolina Asthma and Allergy. Its a drive for me but at least when I tell her that Thomas has a high Cam Kinase score she will know what I am talking about. We get to go on October the 8th. Wish us luck !

 

 

Anne

 

My dd8 has a canker sore and she is struggling right now. I think she picked up a virus in the hospital or at school last week. Her episodes always increase when she gets a canker sore and her separation anxiety is up too. I agree with you on the virus front. I'd like to give prednisone a try sometime. I'm glad you have made an appt. I hope you get some help from her. We go on the 16th I think. Keep us posted!

 

Susan

 

My daughter always has an increase in her symptoms when someone around her is ill.