Got our CamKinase II results back!

[mama2alex]

What a relief to get these back! Kathy emailed me this morning, bless her heart. We are all so lucky to have such dedicated scientists working to find the answers to this.

 

I was so on edge until I saw the results - I guess I half believed that I had somehow dreamed this all up and was chasing down the wrong diagnosis. I was also worried that I'd messed things up by giving him prednisone and starting antibiotics before having his blood drawn for Dr. Cunningham's study. Now I have something concrete that shows us what's going on and it is such a relief.

 

We see the immunologists in L.A. a week from tomorrow and are scheduled for IVIG with Dr. K on October 8th and 9th.

[monarchcat]

Isn't it a weird feeling to see those numbers? I felt such a strange mix of emotions when I saw my son's antibodies and high cam score.

 

Glad you got the confirmation you were looking for... sounds like you are right on track for great treatment!

[sf_mom]

You know its weird, but I too felt a sense of relief.... NOW, I can focus on getting him the proper care and determining underlying immune issues.

 

 

What a relief to get these back! Kathy emailed me this morning, bless her heart. We are all so lucky to have such dedicated scientists working to find the answers to this.

 

I was so on edge until I saw the results - I guess I half believed that I had somehow dreamed this all up and was chasing down the wrong diagnosis. I was also worried that I'd messed things up by giving him prednisone and starting antibiotics before having his blood drawn for Dr. Cunningham's study. Now I have something concrete that shows us what's going on and it is such a relief.

 

We see the immunologists in L.A. a week from tomorrow and are scheduled for IVIG with Dr. K on October 8th and 9th.