Hi, up and down with danny

[melanie]

well its 2 weeks post iv and things are better but not better than last week. Actually there worse than last week.He said to my husband yesterday that the hospital didnt work he still has his ticcs No antibiotics yet either I think hes going to give it to him today I have to call at 10;30AM I see improvement lots but .,. yhe 3 days we had lasy week were amazing Does that mean anything? HELP again ....

Melanie

[CZL]

Is he still on some meds ( SSRIs, .. ) ?

Hope he will improve a lot soon.

 

Jack

[Kayanne]

I think those 2 days last week are probably significant...From what I have read about IVIG and PEX the improvments are not linear....more like sawtooth....one step forward...two steps back...three steps forward...one step back...another mom on the forum has said to try to look at the weekly trends instead of the daily ones, and I think that is excellent advice.

 

Yours son's brain is trying to heal, and his healing will be as unique as he is.

 

When my daughter was on prednisone, it was so hard to not watch for every little improvement. However, looking back it was definitely more like weekly improvements.

 

Good luck

Karen