well were here doing the IVIG

[KeithandElizabeth]

Hi Melanie:

 

This is our first day post IVIG and we are depressed as well!! Intellectually, we know that the brain inflammation can take time to heal. But, emotionally, you just become so hopeful for immediate results.

Every time we think we see an improvement in one area, then we see a regression in another area. I feel like this was like the last straw in terms of treatment and what if this doesn't work????

 

Then I keep reading these posts about augmentin and teeth staining and I am wondering if anyone has ever addressed this issue with Dr. K. He is the doctor recommending augmentin. So, then I feel stressed about my son having brown teeth, but then think this is better than brain inflammation. There is always something to worry about.

 

Just venting!!!

[melanie]

Hey Melanie,

how are things?? How is your son doing? Hope you can all get some rest now that your home.

 

Deann

 

 

hi I dont know he came home last night ticccing now he has a breathing tic like he cant get a deep breath The md said its anxiety. Does it take along time to see any results? The md said if he sees results he will likely do more IVIG. I want to see some good PLEASE some good Thanks Hes going to work with my husband today,He will fill me in during the day.

 

Melanie