PANDAS and low IGG

[kg5123]

My suspected PANDAS son is 15 years old. He has contracted severe tic disorders in the past years. At the same time it was found just seven months ago that he has low IGG -- a bit below a normal reference range. In addition, periodically, he has developed painless thyroditis, which has worsened tic conditions. With the aim to raise his IGG to normal levels, he has been on IVIG every four weeks since early January this year. He has been also on zoloft and other medications. Because of IVIG. his IGG levels have been lifted to normal levels. He has been also free from thyroditis due to the intake of bata blockers with his THS levels back to normal.

And he was completely free from tics for nearly five months -- between March and early August. In mid-August, however, his tic activity resumed and since then appeared accelerated in intensity. We could not recall any particular incident that might have affected his condition, except he swam in a local beach and indoor swimming pool -- places both of which may have posed the risk of infections.

I have two questions. One is what may have been happening to the son, heavily protected against PANDAS with the combination of IVIG and the medications. I would welcome any coments from persons familiar with this kind of situation.

The second question is: Is it rare to see a PANDAS kid with additional problems of low IGG and thyroid? I am wondering what would be the possible relations between PANDAS, low IGG and thyroiditis.

[ShaesMom]

I can't comment on the connection between Pandas and thyroiditis. No one is sure at this point if there is a connection between Igg levels and Pandas but several children have recently been tested and had low levels of either one of the Ig's, Ig subclasses or titers tests.

 

My dd7 has been dx'd with a PID this summer and recently started on monthly IVIG. I know from reading posts on the PID forums that public pools pose a threat for children with immune deficiencies. I know my own child had a flair in her Pandas symptoms two days after swimming in the public pool.

[lss]

Alot of others on the Tourettes panel here have also posted that their children's tics get worse after swimming, and they attribute it to the chlorine in the pools, my son included, but now I'm wondering if it could be because of things such as cryptosporidium or other contaminates in the pool water. My son like alot of others here react to bacterial as well as viral infections, so you never know.

 

http://truehealthistruewealth.blogspot.com...n-catch-in.html

 

Linda