Pudgeo Posted August 16, 2009 Report Share Posted August 16, 2009 Hello, Sorry I was gone for so long, I definitely need to get back here more! My son had a relapse of symptoms. He became ill with a fever in June and he had a definite relapse. He is spacey again, pacing around, moody. Luckily not as bad as when he first started with PANDAS in Jan 07. I restarted the azith 2 months ago but so far no change. I would say overall he has never completely recovered, even when he was doing better, there was still behaviors and things about him that were definitely not there before he had PANDAS. So I feel like now we are starting over ... I wish I had better news! I will be checking in and reading posts now! Sarah Link to comment Share on other sites More sharing options...
KeithandElizabeth Posted August 16, 2009 Report Share Posted August 16, 2009 Hi Sarah: Did your son ever do the IVIG? elizabeth Link to comment Share on other sites More sharing options...
Pudgeo Posted August 18, 2009 Author Report Share Posted August 18, 2009 Yes, My son had 3 IVIG...alot of the "old timers" here know me. I am also restarting doing the HBOT again...back to square one! Thanks Buster for all the research you do!! Sarah Link to comment Share on other sites More sharing options...
Ellen Posted August 18, 2009 Report Share Posted August 18, 2009 How helpful was HBOT? I am curious because my son's DAN doctor has said that it reduces inflammation and she has talked about trying it for him some time in the near future. Ellen Yes, My son had 3 IVIG...alot of the "old timers" here know me.I am also restarting doing the HBOT again...back to square one! Thanks Buster for all the research you do!! Sarah Link to comment Share on other sites More sharing options...
KeithandElizabeth Posted August 18, 2009 Report Share Posted August 18, 2009 What is HBOT? elizabeth Link to comment Share on other sites More sharing options...
KeithandElizabeth Posted August 18, 2009 Report Share Posted August 18, 2009 Sarah: I am somewhat new to this journey, so please excuse my ignorance with some of my questions. My question to you is: if IVIG seems to not be working, do you think that you may have a higher success rate with PEX? elizabeth Link to comment Share on other sites More sharing options...
Ellen Posted August 18, 2009 Report Share Posted August 18, 2009 HBOT is Hyperbaric Oxygen Therapy. What is HBOT? elizabeth Link to comment Share on other sites More sharing options...
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