myrose Posted June 15, 2009 Report Share Posted June 15, 2009 Hopefully someone can help. My neighbors had some company staying at their house and I got to talking about my daughters condition and natural approaches etc.... I also bragged about this board and everyone here and how blessed I was to have found this place when it all started for us. She informed that her daughter has a condition called "Morphea/Linear Scleroderma" I have done just a bit of reading on this so I do not fully understand the condition. She is into treating naturally and would love to find a board like this so she can talk to others about it (just like we all do) Does anyone know anyone who has this condition? And lastly can anyone help (possibly Cheri) in guiding her to a place like this somewhere on the net? I will look a bit now and see what I find but any help or info to pass on to her would be greatly appreciated. Thanks so much everyone Link to comment Share on other sites More sharing options...
ilovedogs Posted June 15, 2009 Report Share Posted June 15, 2009 Hopefully someone can help. My neighbors had some company staying at their house and I got to talking about my daughters condition and natural approaches etc....I also bragged about this board and everyone here and how blessed I was to have found this place when it all started for us. She informed that her daughter has a condition called "Morphea/Linear Scleroderma" I have done just a bit of reading on this so I do not fully understand the condition. She is into treating naturally and would love to find a board like this so she can talk to others about it (just like we all do) Does anyone know anyone who has this condition? And lastly can anyone help (possibly Cheri) in guiding her to a place like this somewhere on the net? I will look a bit now and see what I find but any help or info to pass on to her would be greatly appreciated. Thanks so much everyone Hi Myrose, There was a lady here in our homeschool group who had scleroderma. I do not know which type, though. But, I know she did some experimental treatment in Illinois that wasn't covered by insurance and she's doing very well now. She had the procedure done almost 1 1/2 years ago. If you'd like to PM me I can try to reach her via email and see if she knows of any support groups. Bonnie Link to comment Share on other sites More sharing options...
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