PANDAS

[P_Mom]

http://www.ncbi.nlm.nih.gov/pubmed/18027565

 

 

 

I was "speaking" to Dr. Latimer and she referred to PANDAS as autoimmune encephalitis.....(I know, old news to many of you), so, instead of researching PANDAS, I have now started to research autoimmune encephalitis, BINGO.

 

The above link is very interesting......just a drop in the bucket as to what you can find.

 

This seems to be it.....there should be no controversy in the medical community.

[pmoreno]

http://www.ncbi.nlm.nih.gov/pubmed/18027565

 

 

 

I was "speaking" to Dr. Latimer and she referred to PANDAS as autoimmune encephalitis.....(I know, old news to many of you), so, instead of researching PANDAS, I have now started to research autoimmune encephalitis, BINGO.

 

The above link is very interesting......just a drop in the bucket as to what you can find.

 

This seems to be it.....there should be no controversy in the medical community.

 

You're right - it's all in the wording. Some call it neuro-immune dysfunction and some call it autoimmune encephalitis which is all very acceptable. I think the reason some doctors have trouble with the PANDAS label is because not all children who have these autoimmune reactions react specifically to strep (some react to viruses only). Therefore, they are reluctant to put kids on long-term antibiotics if it is not warranted. I think there are a number of parents on this board with kids who react to different antigens (some to strep only, some to viruses only, some to strep & viruses and other bacteria). Sometimes I think we need to actually change the label from PANDAS to neuro-immune dysfunction because that would encompass all. The thing is that PANDAS is a little bit better understood because the most research has been done in the early days by NIMH. Pat

[mom md]

They(Leckman, Latimer, etc) are planning to rename PANDAS and the name include autoimmune encephalitits. PANDAS makes you think of something happy, and there is nothing happy about this disease.

[bmom]

Dr. K also refers to it as a form of encephalitis. It blows my mind how it is so interconnected to already proven illnesses and yet doctors don't believe. I have spent hours going over the encephalitis stuff and it makes complete sense!