Valtrex question

[pmoreno]

As many of you know from my previous posts, Gaby has about every other month herpes simplex lesions on her lips (These started 1 1/2 years ago along with the start of the PANDAS symptoms). I usually just put something on topically and it's gone within a few days or a week. This time I had gotten a prescription for valtrex 500 mg. 3 x daily for 7 days. I gave it to her as soon as she complained of her lip itching. (I also used the topical stuff) It's been about a week & its gone away no sooner than when I was just using the topical, but I found that this week she has been really irritable and actually incontinent of urine 3 times in the last few days. This has never, ever happened to her before. Has anyone heard of valtrex doing this? I know that some parents of autistic children have used it to recover their children. I thought maybe it could have some benefit for PANDAS too, but now I wonder.

[Suzan]

As many of you know from my previous posts, Gaby has about every other month herpes simplex lesions on her lips (These started 1 1/2 years ago along with the start of the PANDAS symptoms). I usually just put something on topically and it's gone within a few days or a week. This time I had gotten a prescription for valtrex 500 mg. 3 x daily for 7 days. I gave it to her as soon as she complained of her lip itching. (I also used the topical stuff) It's been about a week & its gone away no sooner than when I was just using the topical, but I found that this week she has been really irritable and actually incontinent of urine 3 times in the last few days. This has never, ever happened to her before. Has anyone heard of valtrex doing this? I know that some parents of autistic children have used it to recover their children. I thought maybe it could have some benefit for PANDAS too, but now I wonder.

 

Hi pmoreno..... Our doc just prescribed this for dd8. She has elevated hhv6 titers which shows that she has had or has this herpes virus. His theory is that getting rid of the virus may help with her overall issues since she seems to react with pandas episode to bacterial and viral illnesses. I am nervous about starting her on them due to possible side effects. He wants her to try it for at least a month. Did you continue to use it for Gaby? Did you notice if it helped or just made things worse? My dd gets lots of canker sores inside her mouth but mostly I'm hoping that it will help her clear the virus and maybe it will help prevent her from getting the flu (a bonus) if it works that way.

 

Susan