Antibiotics

[chrisw]

Hi All,

Our journey with PANDAS (actually knowing what was wrong) began in Sept./Oct. of 2008. My son has experienced episodes of extreme separation anxiety since he was 4.5 yrs. old. Looking back now,I know that this behavior began after a bad case of strep. He has been battling this anxiety since then, but in the fall of 2008, his symptoms really exploded into ADHD, Motor tics, verbal tics, frequent urination, loss of handwriting/math skills, more fears, etc. after a dx case of strep in Sept. At least two more bouts of strep followed. Each time he was treated with abx, the symptoms of Pandas would subside. When he was on a course of Azith. in Dec. the symptoms were gone by the 2nd day of abx. and did not return until he went back to school in Jan. I found a wonderful Ped. in Jan. who was willing to consult with Dr. Leckman and Dr. K about proph. abx and he started my son on 500mg. a day of Augmentin.

 

I know that many of you have much experience with the abx. merry-go-round, so I thought you may be able to give some advice. My son's symptoms are about 75-% better on the Augmentin. Many of your posts say things like "this abx. was not working for us". Do you mean that it wasn't protecting from strep and they were still getting it while on the abx, or were the abx. not helping symptoms? My son is constantly complaining about his stomach hurting. He goes to the nurse all the time at school with this complaint. I think it is the augmentin. Also, he got so much more relief from the Azith. but my Ped. seems reluctant to start this process at the top of the abx. spectrum. My son has been on the Augmentin for about 3 weeks now, and I keep hoping things will improve more with symptoms and stomach (he is on a probiotic also), but do you think it is too soon to request a different one, like Keflex, or should I try to stick it out longer? We had a 3 day weekend here, and my son had to be "pried" out of the car this morning by me and 2 teachers. He is 9 yrs. old.... not an easy task. You all are SO knowledgeable so I would greatly appreciate any advice here. I went ahead and put a call in to his Dr., so waiting for a return call from him.

Thanks in advance,

Christie

[peglem]

Hi All,

Our journey with PANDAS (actually knowing what was wrong) began in Sept./Oct. of 2008. My son has experienced episodes of extreme separation anxiety since he was 4.5 yrs. old. Looking back now,I know that this behavior began after a bad case of strep. He has been battling this anxiety since then, but in the fall of 2008, his symptoms really exploded into ADHD, Motor tics, verbal tics, frequent urination, loss of handwriting/math skills, more fears, etc. after a dx case of strep in Sept. At least two more bouts of strep followed. Each time he was treated with abx, the symptoms of Pandas would subside. When he was on a course of Azith. in Dec. the symptoms were gone by the 2nd day of abx. and did not return until he went back to school in Jan. I found a wonderful Ped. in Jan. who was willing to consult with Dr. Leckman and Dr. K about proph. abx and he started my son on 500mg. a day of Augmentin.

 

I know that many of you have much experience with the abx. merry-go-round, so I thought you may be able to give some advice. My son's symptoms are about 75-% better on the Augmentin. Many of your posts say things like "this abx. was not working for us". Do you mean that it wasn't protecting from strep and they were still getting it while on the abx, or were the abx. not helping symptoms?

Thanks in advance,

Christie

 

None of the antibiotics we tried (pennicillan injection, penVK, amoxicillan, Keflex, augmentem, omnicef, bactrim, zithromax-I think that's all!) obliterated the strep-it came right back 3 to 4 days later. Zithromax was the only one, though, that really decreased the PANDAS behaviors noticeably and quickly while she was on it. So, zith is our choice for prophilaxis.